Showing posts with label wholeness. Show all posts
Showing posts with label wholeness. Show all posts

Friday, June 10, 2016

The Fourth Child in Social Hierarchy PART II



In PART I... I spoke about the balance of power in relationships and the Beta male.  THIS time, I want to finish up with speaking a bit about the Alpha male and women who are either Alpha or Beta.  In the scope of relationships and that necessary balance of power I must also address the serious and fatal issues that arise from polarized power between the sexes and tie it in to my own experience.  So, let's get started.

I have to admit I was to write this entry immediately following the last.  However, I found myself getting rather caught up in Ian Somerhalder photos. lol  Now, he 'presents' as the typical Alpha in that he's confident, successful, but also possesses a huge heart and an abundance of compassion.  The Ian Somerhalder Foundation is all about.. animals.  You'll find hundreds and hundreds of photos of him on the web posing with both domestic and wild animals.  The fact that he's an animal lover is a huge clue to who he is as a man.

So is Ian an actual Alpha male?  Well, I wouldn't personally know because I don't KNOW him.  But usually what comes to mind, whether you're male or female, is an image that represents "Alpha."  For some it may be the image of actors who played James Bond.  For others, such as me, it can be someone else entirely.  But when we look back at our history and interactions with various people it's pretty easy to see who's what.

It's not about a pretty fact, btw.  In fact, many Alphas aren't classically good looking at all.  We just find there's something about them....

You'll find opinions everywhere as to what an Alpha actually is.  Some believe that Alpha women are the best because, like their male counterparts, they're successful, confident, etc.  But this really, from a psychological standpoint, is a lot more complicated when it comes to females.  Ever meet a 'Feminist'?  Yeah.  Need I say more?  This isn't always the representation, but it often is.  Not all confident Alpha women make 6 figures per year and own yachts.  Many, if not most, are just ordinary people.

Life experiences affect who we are, which can make or break a woman down to her lowest common denominator.  This, though, is entirely out of the spectrum we want to stay in here.  So, we won't be addressing the minutia of the human psyche and its effects on us as individuals.

The Balance of Power And Sustainability in Relationships:

There's is where I'm going to keep it REALLY simple.  99% of successful relationships have both a male role and a female role---and an Alpha and Beta role.  You have no idea how very important this is.  So let's put it in perspective, in real life situations.

We've all seen enough movies to have seen this Alpha/Beta thing in action.  Fiction does have its components based on actual reality--otherwise there wouldn't be anything to sustain our interest.  If we can't connect in some human way with what we see and hear... we become bored.  This isn't always something we're acutely aware of, btw.

Let's take things OUT of the movies and go straight to the core of the problem.  In every relationship that works there's a male & female role in which Alpha & Beta personality traits are in play.  Again, I'm focusing mostly on the guy's role here for the sake of this discussion.  However, let's also back it down, since we already know what an Alpha & Beta is, and keep it to 'feminine' and 'masculine' traits, because the latter is far easier to recognize.

Whether a heterosexual relationship or gay relationship--it's still the same.  Every relationship has both a male and female component.  We're strictly speaking of straight couples here in this discussion, btw.

Female or Feminine TRAIT situations:

Honestly, this is the worst situation of all, because there is this lack of initiative on the guy's part.  Most women, of course, have feminine traits.  This is problematic because they're both in the mode of waiting for the Alpha to step up, step in, and take charge.  In these situations... it just never happens and ultimately ends up in complete failure.  Both parties are waiting for the other to literally take charge of the situation, whatever that situation is.  If the situation is sex--there's usually BIG trouble.

Beta males, as opposed to Alpha males, tend to sit back and wait for the woman to orchestrate life and, oddly, he ends up resenting her for it later.  When this happens it makes the relationship and everything in it, including sex, extremely awkward.  To say the least.

Most times the tell-tell signs are there, but they're not actually recognized for what they are until it's too late.

Beta males will:

Expect you to initiate sex 99% of the time, and expect more 'receiving' than giving.  More times than not there is they have this sense of entitlement where you're concerned, as well as a sense of expectation without provocation.  In other words, a Beta male is inherently going to expect you to initiate sex, jump through hoops to please him right off the bat, right from the start, and pretty much 99% of the time.  Over time his female counterpart will lose interest in sex with him and begin to pull away.

Eventually, that woman he's with will begin noticing other men, Alpha men.  Again, this is just nature and a fact of life.

This also holds true with the other scenario, that in which both have 'male' or 'dominance' traits.  This is also a disaster because both sides are always vying for power and control.  This second situation I won't go into much because it's outside the scope of this conversation.

When the balance of power is in its rightful place things tend to go smoothly between two people.  If the man is dominant/Alpha he compliments the female role of his partner.  If the woman is the Alpha or 'dominant' role and she's with a guy who just so happens to be a Beta... it just may work out because he wants someone to take care of his needs and, well, isn't willing to initiate himself into any given role or circumstance.

Girly Girls Love Manly Men:

It's kind of how the human race survived.  I don't think I need to go into all of that, because I think you get the picture.

The bottom line is that it's very difficult to be in a relationship with Beta males.  I'm girly to the core and find situations where I'm expected to assume the masculine role EXTREMELY awkward and uncomfortable.  And when it comes to sex in such a situation--it's a major turn-off for me.  Been there, done that.  Ugh.  And, I'm rather in that situation now.  But for the possibility that reason can lead to understanding on his part, meaning.... he really has to come to terms with a LOT and find ways past or around those things.  Otherwise, this situation is doomed.

It takes a mountain of humor to see myself through this, I have to say. I'm not completely confident that it will be resolved, and I'm not exactly sure right now how to manage remaining in this relationship given the outright upset in the balance of power.  And THIS, my friends, is where The Fourth Child comes in.

We've come full circle back to me and my situation.  Even though they did eventually end, the most enjoyable, exciting, and FUN relationships I've had in my life were the ones where I was with the ultimate Alpha male.  The best lasted 11 years until he went full-blown mid-life-crisis mode.  There just isn't any way to save someone from themselves when they head willingly down that path.  He passed away about a year after we broke up, but he was in full MLC swing from what I heard.  But for the better part of 11 years, until his MLC became a relationship wrecking ball, it was pretty awesome.

I've been in relationships with 3 Betas in my life, and not one of those was anything to brag about.  True to my nature I hoped it was a simple matter of respect, or lack thereof.  But as it turned out it was far more than that and something that couldn't be fixed in the short term.  Not my job to 'fix' anyone and I won't waste the energy trying to.

I'm not a psychologist or expert on anything.  My take on all of this is from YEARS of reading books and gathering information from psychology journals and research papers online, and a little of what I obtained in my psych classes in college.  My experiences fall in line with what I've read.

As my life is now I feel as if I'm living with someone who's very much like a child.  He's not a child in his work, because he's very successful.  But when it comes to everyday life it's another matter, and at this point it's risky for me due to my health and physical limitations.  I feel vulnerable and am having a nearly impossible time trying to feel any confidence in this.  The vulnerability stems from my failing health, for the most part.  It's scary knowing that you have to depend so much and count on someone who is NOT the type of person to care this way for another.  Very, very scary.  I've been in a similar circumstance and felt the same vulnerability, the same anxiety, the same exact lack of confidence in both the situation and the person.

Every day that I wake into this life I'm met with yet more reminders of how blatantly awkward and exhausting this whole thing is.  Does he know how I feel?  He absolutely does.  Has it helped?  Not in the least.  The more this fails the scarier for me it becomes, which makes getting my health back absolutely necessary, vital, critical...

The first time I learned about the whole 'Beta male' thing was when I lived in Colorado, some 20+ years ago.  I found it curious and interesting and thought such information would serve me over time.  I didn't count on my own lack of ability to immediately identify such traits, or perhaps.. my inability to recognize I may have been overlooking them on purpose.  But I chose to read a lot of books over the years, off and on, and often by chance, and yet to this day I still don't SEE the writing on the wall until after it's too late.  Not my life's finest accomplishments, I have to admit.

While I mostly write to get things off my chest, out of my system, I also write in hopes of helping others.  Maybe I'll spare someone the hassle of a relationship where there's just a coupling of opposing forces.

In retrospect I see evidence that I didn't recognize at the time.... one in particular...

As I lay next to him, exhausted, and not in a good way I thought to myself... "We can't both be the girl in this relationship."




Wednesday, March 2, 2016

Weak...



It's hard to post entries these days with the growing weakness in my limbs.  Even holding steady with Prednisone dosage the weakness just seems to take over everything, seemingly unstoppable.  I've made major adjustments in my diet, opting for extremely bland food and following a diet that's supposed to help a sensitive digestive system.  I've also stopped one of my medications for reflux (I'm on 2) because it can cause GI issues.  So far I've not seen a lot of improvement, but 'some' improvement is definitely better than nothing in that respect.  Still, the weakness is really taking over things, and I have to say.. I'm really sick of it all.

I dread waking up in the morning.  Sitting up on the side of the bed takes great effort, and lifting my arms to dress, etc. is becoming something I have to 'will' myself through.  I long for the days when I could bound out of bed, ready for the world and whatever the day holds.  This weak and tired person I've become I don't recognize, and yet here I am literally willing myself through what few tasks I'm able to do.  When will these doctors get to the bottom of everything?

Yes, the Prednisone and Aza (Azathioprine/Imuran) have helped SO many symptoms, brought my liver enzymes back into the normal range, but symptoms that persist have obliterated my quality of life almost down to zero.  What's next in the quest for 'healthy'?  I'm doing everything within my power to propel myself towards feeling better, healthy, vibrant--but my body isn't responding to anything and simply grows weaker by the day.  I've no idea what to make of it all.

The liver specialist I'm seeing remarked early on that he thought there was something else going on besides the AIH, remarking on elevated aldolase, which remained elevated even while on Prednisone.  My aldolase levels only returned to normal with the addition of Aza... not sure what that's about, but I know testing for myositis at this point is futile due to my being on prednisone and Aza--the two main drugs to treat myositis.  *sigh*

Well, my arms have completely given out, the muscles hurting badly as I type....

I'm out for now...

Tuesday, February 23, 2016

This is one crazy ride.



Seems like I spend most of my time in speculation regarding my current circumstances.  If there were any other direction in which to channel my focus I would certainly do so.  I mean, no one likes to be bombarded by the kicks, knocks, and out-right punches life sometimes dishes out, and when these are broken by even an occasional time-out then... well, rest and recovery is the only real way to make withstanding the worst possible.  Not to say we're destined to buckle under the onslaught, but it certainly makes it easier to get back up when you have the strength and clarity to do just that.

I'm a bit lacking on the strength and clarity thing these days.

Introspection is the name of the game these days, and I've gotten pretty damn good at being able to look at myself and ask the right questions.  The answers to my questions, however, are a bit harder to find as the questions themselves seem to shift and change and grow more numerous by the day.  Still, looking, asking, and listening for those important responses from 'self' remain the most important part of healing; for me, this is absolutely essential.

Yeah, it's one of those days where I've yet to determine the course of my life.

I'm freaking lost (no surprise there).




Friday, February 19, 2016

Seven Days.



It's an important number to me.  Every 7 days my dosage of prednisone decreases.  While I'm tapering from this extremely powerful drug I experience many unwanted side-effects, much of which I can't differentiate from AIH symptoms.  At 5mg/week my body became my worst enemy, leaving me unable to walk from the living room to the kitchen, making it difficult to walk the very short distance from the room I have to sleep in now to the nearby bathroom.  From unshakable episodes of freezing to feeling as if my body is going to melt into a puddle, I never know from one minute to the next what I'll be dealing with.  The turning point for me a few days ago was waking up before the sun in the throes of a migraine.

Tapering 5mg/week was simply not going to work.

Another call to the dr. and I'm told to go back up to 7.5mg and taper down at 2.5mg/week.  The morning of the migraine I discovered that with that 5mg dosage the migraine would go away, and it was that same evening that I added the additional 2.5mg.  While this seems like numbers and boring, dry information, I promise it's much, much more than that.  My entire quality of life depends on a tiny little pill that had the ability to make or break my life in every way.

On one hand it's a life-saver, and on the other it's dangerous as hell.  It's the drug people with AI diseases love to hate.

The usual thinking on getting off prednisone is to slow the taper the lower the dosage gets.  I'm unsure if I will be able to go down to the 5mg again, but I'll certainly find out next Wednesday.  Just how I'll find out is yet to be seen.  Will I feel better?  Will I feel worse?  Will there be debilitating symptoms again?  Or will everything go smoothly?

Without answers I can't make plans.  With each day being a giant mystery that unfolds one minute, one hour, one symptom (or lack of) at a time I am no longer really in control of my life anymore.  Prednisone now determines everything---basically, it's made me its bitch.

I can be honest about this.  I have to be honest about this.  I'm willing to face this head-on even if it means I'm the recipient, on occasion, of a TKO by a drug that is supposed to save my life.  I'll get up, face another day (albeit at times unwillingly), and keep going.

All of the above has affected my life.  Okay, I accept that.  What I don't like at this time is no support network, no one listening (not including who reads here) when I really need to talk.  If I could just feel good, be without pain, lead an normal life, I can handle the other stuff.

In the meantime I'm ticking down the hours in those 7 days to reach toward that goal of being off a drug that whispers it will save me, while making me feel as if I'm dying.

Seven days at a time... we'll see where I will be when I'm finally free of the prednisone shackles.

We will see...

Wednesday, January 27, 2016

Not Today



I guess after spending the morning trying to write in all of my blogs I'm left with very little.  Hell, I started with very little.  Even so, I'm trying.  I have to be able to look back and SEE where I was so I can assess where I am.  This is all for a reason, all of this talking and contemplating, all the raging and wondering and wishing and... well, it's all for a reason.  Still, I would like to just stare down the crap I'm dealing with and say... "NOT today!"  Yeah.  If only.

My mind is trying very hard to still be 'me,' which means there's SOMETHING still here I recognize a little bit.  If only for a moment I can feel that spark, dulled by illness it may be, struggling to ignite something within the deepest recesses and protected by a very stubborn spirit.  I refuse to let go and give in.

My body, however, has other ideas entirely, and it sends the warning signals with any attempt at doing anything remotely 'normal.'  Don't move, don't clean, don't walk that much, don't pick that up off the floor, don't... just don't.  *sigh*  Enough already!... is what I really want to say.

I have to listen, though, because when I don't I pay big time.  It's hard to accept this state of bad health I'm in, though I do know and accept that it's nothing I did, nothing I didn't do that caused this to happen.  Autoimmune diseases are no one's fault.

I'm so incredibly tired...

Okay, body... YOU win today.

Thursday, January 21, 2016

First Labs Post-Prednisone & Azathioprine



So looks like another medication is being added to the list--Lasix, a water pill.  This is needed to reduce the amount of EXCESSIVE water retention caused by the Prednisone.  I'm really glad to know about this addition, though it's going to be rough heading to the bathroom constantly.  Oh... but I'm SO very glad to do so!  You've NO idea.  But there is other news as well...

Liver enzymes: At the start my liver enzymes (which is NOT a liver function test) were elevated some 7-8 times that of normal, depending on which end of normal you do the math from.  Considered by the doctors I saw these were considered "significantly elevated."  Some people have way more elevation than that, but apparently research says that the actual numbers don't always indicate prognosis or how significant the disease is at the time of diagnosis.  But today, thankfully, I'm told that the one enzyme that is still elevated is only elevated by a little now and "Much better than where it was before." YAY!!  That's good news!

While I have to wait to get the labs actually in my hand to SEE them, I was also told that some tests came back showing mild muscle inflammation.  Not sure which test that was, but it doesn't really surprise me.  I have labs rechecked next Monday also in order to make sure the Azathioprine is helping, and not hurting things.

Good news, right!? :D  And hey, as long as those numbers go down and into the normal range, I can deal with some side effects from Azathioprine.  I mean, as we go along this journey the prednisone will be tapered... and THAT is DEFINITELY a good thing!  Not treating AIH means possible progression to cirrhosis.  Only thing statistics say about this that I don't like much is that 80% of people who go OFF medication to control AIH have a flare up within 1-2 years, and it often comes with the nasty addition of fibrosis or cirrhosis.  Yeah, I'm okay with medication inconveniences over death, thank you. ;)

So what's the deal with muscle inflammation?  I've no idea.  Guess that may be addressed next... we'll see.

How's that for some good news? :D

Sunday, January 17, 2016

Getting My Attention




So, first of all, my blogs are about my life, my seeking to understand where I am and who I am in the midst of a few unpleasant truths.  Be it a past filled with abusive relationships, abuse of other kinds, living with and around controlling people, my health.. it's just me here trying to work things out in my mind, spirit, body, and my life as a whole.  Every now and then I'll indulge myself in other topics, but my goals are to REALLY work though some things that are, frankly, long overdue when it comes to 'dealing' and 'preparing' the broken, jagged pieces of who I am.

There will be times when I speak of things completely outside of myself, and when my focus is on me.. it's not because I WANT to be in that inward place so much.  Actually, where I want to be is healed enough on the inside, both physically and emotionally, that I can turn my attention further outward and away from that inner ground zero.  I'm not comfortable in this place and want a way out. THAT is why I talk about what I do and from a place that is centralized and within.  This is how I'm dealing.

And I make no apologies for how I choose to work through the matters that demand my attention.

Peace.  Joy.  Happiness.  Comfort from within.  Hope.  Freedom.  To have wings again... to live, to breathe freely, to seek more time in that outside world... I don't think my dreams or goals or wishes are that much different from others.  Correct me if I'm wrong here, but I think most of us would like those things I listed to be the foundation for everything else.

The more I find my health failing, the more I reach for what was, could be, and has been.  Why not return and see a better past and hope it can be again?  Why not remember when life was, while not easy, at least more like LIVING?  It only makes sense to me to make that a focus.

I've turned away from my own needs for so long that I was lost to everything completely outside of me.  I disconnected from my own personal truth, my dreams, even my own body, and I paid a terrible price for that, a debt I'm still paying as of today.  And all because my core belief hinged around making sure others had everything they needed first, that they were happy, and by God if I had to change who I was completely to make a loved-one happy, then by God I will do it!  What the hell was I thinking?  No!  That's NOT the way it's supposed to be, and yet I wasn't ever taught to take care of me.  Life was always centered around pleasing someone else.. all of the time... beginning with my mom.  This is repeated in nearly every relationship I've had.

I was told in a past relationship that I was self-centered.  Words like that hit me pretty hard and a reaction is always immediate.  Self-doubt steps in and takes over, pushing reason and logic aside to wither.  Having spent the better part of my life as a chronic people-pleaser, because God forbid I risk anyone's ire by disappointing them, I've attempted to 'reinvent' myself to a point where I've come dangerously close to losing who I am.  I know it's the inner machine working and grinding to reconcile this new and "selfish" idea that I should, you know, maybe start taking care of myself with being that person who was always, always putting everyone and everything else first.  And yet each and every time I try to do something for myself out of self-respect, logic and reason, I get a hard flash of guilt that makes me question why I would bother [doing anything for me].

Why I listened to anyone who didn't have my best interests in mind (to say the very least) is beyond me still.  If I ever finished the therapy I began at the end of the last relationship I probably wouldn't be wrestling with this right now.  I will say I learned much in the few short months I did see a therapist, one I was seeing because I DID recognize the damage that was done to me in the last relationship.  Beverly taught me a lot, and not just about myself but about the other person involved.  And I cried the day she told me, point blank, that I'd spent far too much time in my life focusing on the happiness and needs of others, and that it was time to accept that I needed TLC as well, especially from myself.  I had this sense of surrealism, and it was very strange to hear someone say those words to me in the way she did.

And yet I thought.... 'What's the catch'?

That's the real issue.  I don't trust easily now.  And I used to be a subscriber to complete and total blind trust.

No more.  I can have a healthy amount of trust without all the blindness, but it will take time.

And the guilt, the constant guilt whenever I speak about my problems here, whenever I do something positive or uplifting to my spirit, my soul, whenever I open up and speak from the heart about what's going on with me, my life.. that guilt cripples me, and the ugly voice of the past speaks up and tells me I'm selfish for doing anything at all to make my own life better.

...... more later.....



Wednesday, November 11, 2015

PART 1: I wasn't supposed to be... awake.

But I was... the entire time during the procedure.  It's not exactly the nightmare they make movies and write books about, but it more than surprised me, and it most DEFINITELY surprised the radiologist performing the procedure.  Really.  I was supposed to be asleep.

I arrived at the hospital yesterday morning to have a liver biopsy done.  I'd already researched enough to know what to expect, talked to people in the forum I belonged to to hear their experiences.  I wasn't expecting to be this surprised.  Oh, but I was.. and in more ways than one.

When the radiologist came in with another doctor to talk to me about the procedure, what to expect, how it will work, etc., he mentioned HOW they were going to access my liver.  Now, this is where the first surprise came in...

He began telling me that Dr. S wants things done a particular way and that the procedure I'm having is "tricky" because it involves entering the jugular vein and inserting a wire that will be able to reach the portal vein in the liver in order to check the pressure there.  He began telling me the risks to the heart and lung and liver.  I listened, but I was confused because I thought I was to be there for just the biopsy and didn't know anything at all about checking the portal pressure.  Skipping ahead...

We talked a little about the procedure, and the radiologist reassured me that Dr. S was very specific about what he wanted done.  I asked if anything bad had ever happened during the procedure with anyone he's done it on and he said that the only thing that has happened in his (long) career was one patient's heart went out of rhythm and wouldn't go back in, so they had to stop the procedure, send him to the cath lab to shock his heart back into normal sinus rhythm.  Ok.  Only one event.  So I said..  "Ok.  Let's do this."

The Dr. assisting the radiologist explained about the two medication that I'd be given, that I wouldn't be put completely under but would be unaware of what's going on and wouldn't feel anything, except perhaps the lidocaine they would use on my neck where they would make the tiny incision to access the jugular.  He said I would just 'sleep' through the procedure and would not have any recollection of it at all once it's done and I'm awake.  I was familiar with this because I'd had a heart cath in 2013, and ablations on my heart in 2014... so that twilight sleep I know about and have experienced.

...Off to the OR we went.

Once on the table the anesthesiologist told me she was giving me the first dose of sedation, and that it would be done in stages until they're ready to begin the procedure, then she added "The lidocaine may bring you out of this for a moment because it stings, but it will be brief."  By the time they were ready to begin I was loopy as hell, but I was awake.  One last dose was given, because I was awake... and I think I nodded off for a minute or two.  Then I was awake again.

Awake, aware of my surroundings enough to hold a conversation.

I heard the radiologist say he was administering the lidocaine.  Oh yeah---I definitely felt that.  But it quickly receded and I felt nothing in that area.

I felt the cath wedge go into my jugular, and I continued to feel it go down my chest, felt something strange with my right lung, felt it proceed past my heart--to which my heart fluttered a little--and then nothing... for now.

I heard every word said, heard the radiologist talking to the doctor that was there, even remember hearing him calling out the numbers once he began reading the wedged pressure and free-flowing pressure.  I remember the numbers exactly.

A couple of times the anesthesiologist raised the blue drape over my face to look at me, and I returned with a smile.  Then... they changed Caths and went back in to take the biopsy samples...

The first "snap!" I heard had only a little discomfort with it.  The second "Snap" was a bit more painful and I said.. "Oh, that one smarts!"  This was the first time the radiologist knew I was awake.

"How much did you give her?" I heard him ask the anesthesiologist.  "She's awake."  She responded with the dosage she'd given me, and he said.. "Wow.  I would be on a vent if I'd had that much."  He has a smile in his voice, so I know he was just joking a bit. Plus I was familiar with this radiologist as he'd done the biopsy on my thyroid nodule a year ago.  He's good guy, a really skilled radiologist.

So the third "Snap" I heard came with significant cramping across the entire front of my ribcage, where the liver is.  And oh yeah.. THAT one definitely hurt.  And folks, I have a high pain tolerance for stuff like this, having kids, etc.  So when I say it hurt.. I mean it.

Once they were finished they removed the blue drape and one of the nurses told me she was applying pressure to the little hole where they'd entered the jugular.  She told me there may be a bit of a bruise there and that she was sorry if the pressure she was applying hurt.  It really wasn't that bad, and I told her so.

As I lay there with pressure being applied to my neck the anesthesiologist came over and apologized that I felt pain and explained she wasn't sure why I remained awake.  I assured her that it was okay and that the pain I did feel didn't last a long time, that I was okay.  They returned me to recovery.

I told my nurse there what happened, and she looked at me as if I'd grown a third eye. lol  The other nurses turned around (my bed was right next to the little desk where all the nurses sat) and gave me a look of horror. haha   Hey, no events... so to me this was a good procedure.

I'll have the results in a few days, I think.  But I don't believe I have portal hypertension at all.  I believe Dr. S just wanted to make sure due to some of the symptoms I was having.  As for the presence of any cirrhosis... I don't believe that's the case either, or Dr. S would've seen the prominent veins in my esophagus etc. when he did the EGD a couple of months ago.  What I DO expect is to see  if NASH is actually present and to what extent, and if there is any fibrosis or not.  I fully expect the outcome to be okay, with perhaps  NAFLD or maybe NASH if inflammation is present.


Monday, November 9, 2015

Did you really think I could just forget?





I think I'm spreading myself too thin at times, posting on several blogs in order to compartmentalize my thoughts into a neat, tidy little group of online sources that I can visit in retrospect.  While it helps on some level, I'm left a bit exhausted at times.  Like today.  So very exhausted.

All things are transient, ever-changing...

Friday, October 30, 2015

What I learned




Every experience I've had has taught me more than I really wanted to learn, and it wasn't always sunshine and rainbows.  The good stuff wouldn't be recognized as 'good' if there weren't any basis for comparison.  While I grit my teeth and muddle through the bad, I still dream of a future where the good definitely outweighs the bad.  Is that just asking too much?

NO!

I can only take so much.

The sticking point for me these days is a past that comes back to haunt me.  As I've said before, closure in situations of loss is necessary, no matter WHAT people try to tell me (and themselves).  You can't push it aside, or bury it deep, or completely ignore it because it absolutely WILL drag you down to the depths of hell-on-earth while you may be completely oblivious to the signs.

I am well aware of why I can't get closure.  I've been told why, but it was unnecessary.  It took a few steps, introspection, and I had to take a huge step back to see the truth.  When it finally came into focus I was completely taken aback by the sheer force of what I was shown.  My God, how did I not SEE???!!

All that confusion, all that not knowing who the hell he was from one day to the next, all that unrecognizable behavior, the words, the everything.  I didn't question, and that was my first mistake.  I put the rose-colored glasses on and blissfully went through the world in a daze of utter ignorance to my situation, of who and what I was dealing with.  Oh, I've stopped asking myself WHY I did it, because I've gone past that and know better now.  But I still have so many times when I mourn the loss of that person...

Mourning still because there wasn't anyone to say goodbye to.  Why?... because I fell in love with someone who didn't exactly exist! 

This revelation, when it came, knocked the wind out of me and created a sense of loss unlike anything I'd ever known.  Why did it hurt so much?  Why did it take so long to let go?  Why does it still haunt me today?  The reason is stated clearly above, and it's impossible to say goodbye to someone who never existed in the first place.

So who the f**k did I fall in love with?  Not sure, really, as I didn't exactly get to know him that well except for the dark stuff.

How did I manage to move on?... Well I've not moved on totally, which means I haven't moved on.  Strange as it may sound BOTH are true.

I just keep working through it--the confusion.  I mean, what else is there to do?  There was never any closure to allow me to move to the next level and stay there.  The grieving process for breakups is the same as when someone dies, and the process is rather circular... at least for a time.  Back and forth you go through the stages until you reach the final stage that sets you free--acceptance.  While I ACCEPTED the situation for what it is, accepting the breakup isn't exactly what happened, because I'd no idea WHO it was I broke up with.  The person I was in love with changed SO drastically that it took my breath away--and in all the WRONG ways, I assure you.

The less I recognized him the more confused I became, and a part of me continued to search for the person I'd fallen in love with.  This was the cycle I was trapped in while still with him.  While blindsided by the behavior, the sneaking around, and so forth... I still forgave because I was erroneously convinced that he was still the person I fell in love with.  Yet, I didn't SEE anything at all that I actually recognized!  Nothing at all.  The face was the same.  The voice was the same.  But everything else---NOT at all recognizable.

Look, I know people go through events and situations in their lives that change them for a short time; but eventually they get back to themselves again.  Also, the person they are shines through despite what's happening and the resulting behavior etc changes.  I get this.  I've gone through it myself.  However, the absence of ANYTHING recognizable in that person was the most perplexing part of the whole thing, leaving me to ask inwardly and often.... "WHO are you??!!"

I still learned much from the ordeal, and I know exactly what I won't deal with ever again.  I also know exactly what I want.  No one is perfect, and I don't expect perfection, but I do know what's right for me... now.

More on this later....

Thursday, October 22, 2015

Guys and epic failures: The humor and the hurt




A friend of mine (who now lives on the east coast) called me the other day out of the blue to share something both heartbreaking...and hilarious.  The conversation began very teary on her part, but after a good hour of talking we were both laughing, and I mean REALLY laughing.  She and I have known each other for several years now, and we have shared pretty much EVERYTHING.  Sometimes our shares were incidental, sometimes on purpose, but we really ended up knowing probably far too much about each other's private lives, which means... we're pretty damn comfortable talking about anything our hearts' desire.  Yesterday was one such day.

I will refer to my friend as R in order to keep her anonymous...

Skipping over the tearful parts (because she reads my blogs) I will say that the entire subject matter of our 3 hour+ conversation was primarily about guys and their epic failures in relationships.  Now, for the couple of guy friends who I've given my blog addresses to... you know I'm not referring to you!  Some guys are sweet, genuine, real gentleman...to say the least, but those guys are very, VERY rare, and I will tell you this---you will NOT meet those great guys online.  Sorry to burst the bubbles of those on dating sites, but... you simply won't.  Advice---save yourself the grief of even going there (online dating sites), because pretty much everyone I've ever met, with the exception of one person who met her guy on a Christian dating site (one you pay for), has found that there's mostly riffraff on there.  And ladies...seriously, it does NOT matter what they guy does for a living or how much money he has!  Just don't go there!

Okay, so R's ex (a recent event, btw) seemed to have been maintaining his profile on a popular dating site...the entire time he was with her.  God, but her story sounds just like mine with my ex!  She found out via another friend who is also on the site...when he showed up in her searches (same thing that happened to me).  So as she cried and expressed her shock, bewilderment, hurt, and anger over the phone... I remained quiet, thoughtful, and listening, because I have been where she is now, and it's one seriously ugly place to be.

I think it probably took her a good 2-30 minutes of crying and venting before she took that deep breath, sighed, and waited for me to respond.  She already knew my history, which means she knew I would understand.  And I do.  I told her how sorry I was that she had to go through that, and I told her she had every single right to feel outraged for what was done to her by this "guy" (whom I did not ever refer to as a "man" for obvious reasons).  Then she began to gush details, ones that in the light of day and 'after the fact' are really... well, rather hilarious.

She spoke of his quirks, personality flaws, and especially about his sexual inadequacies, ones he apparently was quite proud of.  I have to wonder if all guys are clueless to the things THEY like... that simply don't work for women?  So we talked about this for a bit, about why guys sometimes do what they do in the bedroom when it only benefits them and leaves their partner... well, unsatisfied.. or turned off completely.  With the latter in mind, the real conversation began.  She spoke of how the last year of their relationship she'd gone completely bored with him, sexually, how everything he did was for himself, and how he seemed shocked and angry because she was losing interest and couldn't hide it any longer.  She spoke of conversations she had with him that, at the time, seemed SO serious...when in retrospect were completely laughable.  Hindsight, you know... lol  I've had many revelations like that myself.

I felt for her as she told me in great bloody detail how her guy had failed repeatedly to perform.  "Hours.  We would do it for hours, with his talking and moaning and going on and on and on.  I mean, he was so into his performance, into himself that I think he completely forgot I was even there!  What the hell?"  After a moment's pause and neither of us saying anything... we both started laughing.  Suddenly the unspoken part of our mutual understanding of such things became something we could laugh about.  This is a good thing.

She told me that he was attempting to perform OS on her and that after some time of his robotic performance she told him to stop...to just stop.  Wow, I have to say this one really hit home for me, because the very last time "I" enjoyed or even wanted OS this was done to me, as punishment (a subject for another day).  And when she said, "I told him that was it. I didn't want him to ever do that to me again!"  Well, we can certainly say this was an epic failure on his part.  And as R talked... I could see, like with my previous situation, that this really was the beginning of the end for her.

She spoke of issues beyond sex, the cruelty, the way he made himself scarce in her life... leaving her wide open for meeting someone else, etc.  How is it, we both wondered, that guys can be that blind to the things they do that change the way their GF's or wives feel about them?..only to go on to blame her for the relationship eroding?  It's a mystery, I'll tell ya.  A mystery.  But R and I had a lot of laughs as we talked, and she at least was able to get to a point in the conversation where she was focusing on what she REALLY wanted in a guy, a relationship, rather than the time wasted with someone who honestly didn't have her best interest in mind anyway.

"He's not going to even notice I'm gone until, during sex, he looks down and sees that I'm actually not there!" lol  I will never forget that phrase!  Hilarious.

I'd asked a guy friend of mine about 3 years ago why some men behave this way, and he said that not all guys do, then added... "A lot of guys are attracted to themselves" and added that if the woman makes HIM feel sexy then he feels attracted to her for that reason, that men can actually be turned on by their own performance in bed, rather than the women they're actually in bed with.  WOW!  I was really shocked to hear this, though I shouldn't have been given my experience.

My friend, whom I will call "C," is extremely intelligent, has a lot of guy friends, women friends, and is fairly open and blunt when he speaks.  He'd been warning me about my situation nearly the entire time as he saw things in my relationship that were, in his words, huge warning signs.  Should I have listened to him?  I don't know, because I believe that everyone that comes into our lives are there for a reason, and it's usually to teach us something.  In my case, a couple of things broke, and I mean really broke that I'm pretty sure can't ever be repaired.  The experience changed me so significantly in a couple of ways that I just don't see those parts of me ever returning to what they were prior to the relationship.

I can't really can't say here what it is that's broke so completely due to account settings.  I'm not sure if anyone 'under age' has stumbled across my blogs or not, so I have to keep some of this on the down-low.... until I change my settings back again to include a warning for adult content.  Until then, let's just suffice it to say that while I mourn the parts of me that were shattered in that relationship I do recognize the protective stance I've taken since then.  My trust in guys is severely diminished due to what I went through, and I don't allow anyone to reach that vital part of me, of who I am.  Maybe this would change if I resumed therapy, which I had to resort to after the break up so I could repair most of what was damaged.  But, I'm not exactly sure I'm ready for that, because a huge part of me likes things just as they are.

The person I'm with right now has been flourishing in the 'epic fail' department.  He knows, and he's not given any of it any real thought, time, attention, nor is he made any effort to work on things.  His bad, because I'm beyond arms-length now and am completely focused on my health and well-being, rather than him.  It was a natural course of events as my health plummeted under the onslaught of the past and the damaging effects of the now.  As controlling as the previous relationship was, this one is as controlling...but in a very different way.  Either way, control doesn't work for me, and I am going to give absolutely everything I have to regaining my health, self-esteem, and repairing my damaged self-respect.  These are the only things that matter right now.

R and I had a good conversation, and one that ended with us both laughing.  I think she's going to break free from those traumatic bonds and move forward as a strong, single woman.  She isn't up for another relationship, and I can certainly understand that on SO many levels!  For me, I refuse to be another afterthought, slave, or punching bag for any guy.  If I'm not appreciated, then I will appreciate myself first and foremost.  It's the least I can do.

The conversation with R has reminded me of things I'd left for dead in my recent past.  So be it.  I'm sure I needed reminding for some reason.  Maybe that will be my motivation to plug ahead with getting my health in check, to become stronger inside and out, and to also remind myself that the choices I've made in light of my past are mine to make and mine to keep.  What's done is done, and thought I came out on the other side of things somewhat broken, changed... it's probably for the best.

Sunday, October 18, 2015

PART II: You can't treat me this way





I no longer care if I'm heard.  My resolve is strong enough that I can take things from here.  My guess is that many guys shrug things off and feel justified in their indifference, and I am more than okay with that right now.  I'm in a place that indifference, silence, and flipping the switch to autopilot just gives me more time to focus on what I need, healing, happiness and health.

Give me enough space and I will build a universe!  And yes, L, you may quote me on that. ;)

Even when I resort to the introvert side of me, or if I'm venting in order to sort through the muddle, I'm a LOT stronger than you think.  Don't underestimate me, because others have and discovered quickly that I don't require their help, blessings, or support in such matters.  If it comes down to the wire... I've got this!

Yes, it would be nice to have people close to me who are supportive.  But I've long since learned that it's not an actual requirement in order to succeed at my goals.  of course, there is a lot that's to be said about having a good support network when you're going through difficulties.  Still, if that network and support isn't there, I have to resort to my own devices.

This is where I am right now.

....Will continue this soon...
It is said that even the strongest of feelings expire when ignored or taken for granted.  And this is not the first time I've felt those feelings die inside me....

It's becoming ever clearer to me that I have to take back my life.  I resolved a few years ago to not allow another guy treat me badly, and somewhere along the way... I've become my best advocate.  How did I manage to get that right?  ;)  It's all good, because I know what's needed and just have to get to the task of implementing the things I know that work.  The lessons learned by a therapist I spoke to a few years ago have become invaluable and necessary.

Don't let anyone tell you there's anything wrong with talking to a therapist.  A strong person will look for expert advice when they feel stuck, as I did.  While I spoke to her for only a short time, what she revealed to me would forever change my life.  I now have tools at my disposal for not only recognizing that which harms me, but also for ensuring I don't become easy prey again.

People cause harm in many ways, right?  But we don't often recognize what's happening until the damage is done.  The real trick is to stop things before the damage becomes permanent on ANY level.  I was only somewhat lucky in that, but the parts of me that were deeply harmed are now the strongest.  Go figure.  I guess the cliche we all overuse to some some degree actually has merit.

Intention.  So this is something we humans also focus on when assessing where we are in a complicated situation.  We ask ourselves 'What did they mean?' or 'Did they really mean that?' in scenarios where we're blindsided by the harmful actions or words by another.   No matter if I question the other person's motives, because I've learned to ask myself the more important questions: "Am I okay with this, and if not, how am I going to handle things?"

My striving for better health while doctors give me medications that literally counteract that goal means I have very little tolerance for bullshit these days.  In this present state of body and mind I have absolutely NO PROBLEM asserting myself.  And I will tell you that this is something quite new for me.  Somewhere along the line I grew one hell of a backbone.  I'm more than okay with this, btw.

Oddly, since being with T I've evolved to focusing less on "love" than on respect and humanity, compassion and kindness.  I never EVER ask "Does he love me?"  Because, honestly, that means nothing to me right now.  I don't equate love with gifts, material things, money, or even someone's physical presence.  No, because those things mean nothing if the motivation behind one's actions are self-serving or indifferent.  And yes, people CAN give you material things, money, even their time... and not have your best intentions as their motive.  I will never be swayed by 'stuff,' nor by someone who feels as if they're doing me a huge favor simply by 'gifting' me with their presence.

If someone is here and yet 'not here,' being alone is far more peaceful, healing, and promoting of good physical and mental health.  It's just plain unhealthy to be around someone who is barely, if at all, actually 'there.'  But what does this mean, exactly?

A person has the ability to be present while not saying or doing anything.  You can sit quietly next to someone and feel their presence.  It's unmistakable if you're paying attention.  Unfortunately, I've been 'empathic' my entire life, and even as a child I could strongly feel when someone didn't want me around, was angry with me, etc.  I assumed everyone was like this, and boy was I ever wrong.  Even so, coming to terms with that part of me as an adult was both easy and difficult, because I really didn't know WHAT I was to do with that information.

I can filter somewhat, but not very well what I feel from others.

When being misunderstood becomes a major stressor:

This is a big peeve of mine.  Communication breaks down if one party is always over-scrutinizing what the other is saying.  Wth can't people just, you know, LISTEN?  Why do some people allow the wheels of overthinking to kick in and destroy what would otherwise be a productive conversation?  I will never understand this as long as I live.  Honestly, just listen to what the other person is saying before you pass judgment on what you THINK they "mean" by their words!  I've dealt with this way too much over the past few years, and I'm more about a 50/50 conversation that both people are not only participating in, but equally open-minded in as well.

In my current situation, due to the 'tuning-out' factor, I'm often misunderstood.  I mean, if you're not really listening or engaged in the exchange then you're not going to actually HEAR what it is I'm saying.  And if you don't WANT to be in the conversation, man-up and say so.  There are always other people to talk to.  People who've known me for many years understand me, and they do so because they've been a respectful participant in enough conversations with me to know exactly who I am and what I need.  And in turn I also understand them and what they need out of the conversation.

This has turned into a bit of a purging session, really, and I've strayed a bit off-course.  All of the above is connected, but my goal here today is to talk about what I need and what I'm willing to put up with.  The Reader's Digest version of this would be---disrespect is a deal-breaker for me.  One for of disrespect is not listening during an important conversation.

..... Part II coming next.

Monday, October 12, 2015

I am...





I am a person, a human, a woman, someone with feelings, thoughts, hopes, dreams, intelligence, passion, and a heart.  I feel, breathe, think, love, hope, hurt, give, and bleed.  I am sensitive, patient, empathetic, sympathetic, spiritual, and I feel deeply what is sent my way.  My pain is real.  My joy is real.  My love is real.

I am real.

Because I am, I feel.  Because I think, I feel.  Because I breathe, I feel.  Because I have a soul, I feel.  And what I feel is exactly everything.  When you speak, I feel your words, and when you don't, I feel that as well.

I hear you when you're not talking.  I see you when you're not there.  My mind, soul, spirit and heart remembers everything.  I feel everything you've said, done, not said and not done, and it has changed parts of me, of who I am.  But I will find a way and strive each and every day to heal, to restore all that I once was.

The parts of me you broke with your words and actions, or inactions, are still there.  Every shattered part of me holds on and waits to be healed.

I am healing, though much slower than I'd hoped.

Inside there are are pieces that aren't mine at all but harmful remnants of an experience that threatened to change me completely, insidious shrapnel of an emotional war I never wanted to be a part of.

I'm passed the part where I forgive myself for willingly allowing myself to think everything I experienced was okay.  I apologized for allowing so much harm to be done as I did nothing.  I no longer ask myself 'why' I didn't exit much sooner than I did.  I've come to the conclusion that some things I will most likely never come to terms with, maybe not even completely heal from.  I can't say goodbye or get closure from someone who basically didn't actually exist.  Realizing that everything you thought you knew about someone wasn't real is beyond difficult, because there is no one to say goodbye to when the relationship ends.

I will heal.  Eventually I will be fully me again.  But there is much to sort out even now.  The wound opens time and time again because closure wasn't possible, and I work to forgive, repeatedly repair the damage that never seems to fully heal.

Anger is part of the process of letting go.  In the stages of loss, which happens with breakups, one must absolutely feel every stage.  But who am I to be angry at, sad over, etc?  The person I fell in love with, in the end, revealed so much about themselves as their guard went down that I didn't even recognize them.  At all.  I was allowed to see what they wanted me to see early-on, and I fell in love with THAT person, a person who disappeared completely and was replaced by.... a stranger.  I did not recognize that person and never saw the one I'd fallen in love with again.  So when things finally ended, there I was, wondering who I was supposed to say goodbye to.

More on this later as it's bigger than I'm able to speak about or even deal with in-short.

Is this the beginning of getting back to me again?

Friday, October 9, 2015

I hate freckled bananas

I mean, they look like they've lost their will to live.  And the really brown ones, that's just overt depression.  The key to helping them is to give them a new reason to live; you know, like.. banana bread.

Tuesday, October 6, 2015

Our Own Personal Static



Being present.  It's not always the easiest thing in the world, is it?  I mean, every single human being on this planet has to deal with pulling themselves back from their own personal static.  It's not about being falsely-focused during a conversation, but rather being genuinely interested, connected, even polite.  The static is always there, always real, and it makes us who we are.  In fact, that static of our own thoughts is a simple by-product of a complex intellect.  And we are all participants in self-indulgence, mired in the buzz and whir of, well, thinking.  There's just too much going on in our heads, right?

Wrong.

I can say with confidence that being ignored isn't one of my favorite things, and yet it is a daily energy-suck that refuses to let go of me.  I live with someone who is chronically in the throes of his own personal static.  Honestly, these days I feel like a ghost, invisible, and as if I have absolutely no voice whatsoever.  It's getting to me.

This entry sat in "Drafts" for some time now, and oddly.. it's relevant to what's going on STILL.  I'm personally tired of the static I'm surrounded by in my everyday life here with T.

More on this another time...

Monday, September 28, 2015

A Beautiful Mess




I often think; here is this unrecognizable person in a completely unrecognizable life.  What do I do about finding my place.  Dear God, but this is a common topic, isn't it?  There's a reason for that, and that reason is quite simple; I've yet to know the answer.

Monday-Friday are the easiest days of the week, the best days really.  I'm alone, but that gives me a moment to take a deep breath and try to navigate on this crumpled map whose lines and defining points have faded or become too abused to be read anymore.  If I'm to find my way it will require intuiting and an enormous amount of courage.  Without a sense of direction there's no telling where I'll end up when I reach the unknowable destination.  I guess I'm okay with that, though.

One thing I can say is that I can clearly see my destination.  Well, okay.. most of it.  But I see enough to know where I should be.  And isn't that really what we need to know?  Isn't that the most important information of all?  I certainly think so.

So many plans; so many thoughts and dreams colliding all at once.  It's a beautiful mess.






Friday, September 25, 2015

The Beautiful Face of Good Health





I tend to scatter my thoughts, experiences, opinions, and everything that passes from my mind to the virtual 'page' between my blogs.  It's just the way it is since I've promised some to not delete any of my blogs.  Fragments of the whole picture of my life, thus, remain scattered here.  But then, each entry is a story in and of itself.  In so many ways... it's just better this way.

IV iron infusion part 1 is next week, and the second treatment is 7 days after.  Sleep study the other night was revealing in ways that gave me hope.  Progress is often non-linear and chaotic.  But wouldn't it be nice if everything in life was precisely ordered?  No.. even I don't believe that.  Chaos is just nature's way.

While I don't have obstructive sleep apnea, I have another form.  Okay.  So there's a treatment for that, one that has been proven with just one night at the sleep center.  Who knew CPAP could make that much of a difference?

I'm on my way.

I'm a bit on the tired side again today (no home CPAP until tonight), so this is short and... a little flat, I'm sure.

....there is still so much to talk about....

Thursday, September 10, 2015

You found a what?





Well, yesterday's appt did NOT go the way I expected.  At all.  Not.  At.  All.

So I went for my follow-up appointment with my pulmonologist yesterday, mostly to discuss chest CT and sleep study results.  The minor part is that they found 'mild sleep apnea.'  Ok.  Then he went on to discuss the lung nodule...and something else they found on the CT.

Doctor F stated that the lung nodule was slightly larger, but it also is "Very strange looking."  He went on to explain that there is a "Tubule" attached to the nodule that the radiologist says "May" be due to an impacted/clogged something-or-other-that-I-can't-rember due to my inability to sleep work a f*ck!  Sorry for the potty mouth, but it's true.  Anyway, the nodule is odd and he said he has to "Think about it a bit..." and may possibly do another CT scan, only with contrast this time.  He's not sure, because he doesn't know what to make of the findings.

Then he said there is another nodule... 1.9 x .5 cm... in my breast.  Well K den.

Next week I have to have another mammogram, and they're insisting they MUST have the last one that I had first, the imaging.  I'm a little spooked by this.  No one is telling me the characteristics of the nodule, and now I understand why the imaging center flat refused to give me a copy of the report... that was finished the day after my CT.  Normally.. I have no issues getting copies of lab or imaging reports.

I also have to see a hematologist (possibly) for the anemia, because the colonoscopy and EGD did NOT show any causes of the anemia.  I will start Rx iron pills today or tomorrow, though.  Hoping I can tolerate those.

Now the big, fat, giant wait.  Again.  Seriously?

I'm nervous about the mammogram, obviously, but the worst part is T's attitude.  He is just mostly put out because I wanted him to give me a ride there, to be with me while I have this screening.  He basically complained, meaning it was an inconvenience.  I simply told him, never mind... I will take myself!  I certainly don't need some whining, self-absorbed, watch-checking complainer coming with me on THE SCARIEST and most stressful test to-date.  Mr. Indifference needs to keep his distance, because what I need right now is far from whining, complaining, etc.

Yes.  It's time to be a little pissed about this.  And I am.

Dammit!!

So what of the heart, home, a place where my soul can feel uplifted, rejuvenated, allowed to grow and breathe and soar?  Dunno.  Still waiting on that one, I guess.  Dealing with the anemia is a start.  PC doc is referring me to a hematologist to see what the cause is.

Dammit again!

*sigh*

So much for strong suggestions

ME22 & NE23.  NEFL Eagle cam. Screen shot and photomanipulation by me. Copyright American Eagle Foundation. My physical jour...