I'm a little behind still. Hoping to catch up this week....
Showing posts with label home. Show all posts
Showing posts with label home. Show all posts
Sunday, November 13, 2016
Tuesday, October 25, 2016
Better late than never, right???
For those of you who said you preferred the audio blog entries. Was done a couple of days ago, so I will try to make another one sometime Thursday when I have free time. :)
Friday, September 16, 2016
Autumn Whispers To Me: A memory. A book-to-be....
My favorite time of year is here, and I've taken the first steps to re-vamping my sites so I can have them live again. A story, a memory, and a future-book, "Autumn Whispers to Me" will be live soon. Until then, there are the audio blogs...
Thursday, June 16, 2016
"You've chosen lessons of pain."
I received a message with this video in it yesterday. I have no idea who the person is who sent it... but, oddly.. this is one of my favorite songs and one I listen to every night. Headphones on, dark room, and songs to obliterate the thoughts....
Tuesday, April 19, 2016
Home.
The closest I've come to being "Home" once moving out of my mom's house at 18 is Mobile, AL. I had a tiny little apartment, and though not every moment there was perfect, it felt safe, and it felt like a warn welcome every time I walked through the door--no matter how good or bad things were. It was a safe place for me to be myself, where I could decompress, where I could dream, wish, hope and feel alive. This is not the case where I am now. Not even close.
How did I get here? I got here the same way I got into every bad situation in my life; By pure blind trust. It's a flaw of mine and one that's gotten me into more trouble than I can tell you. I give people the benefit of the doubt, take them on their word, and actually believe what they say. Well, to a point anyway. The thing is, that 'point' in which I pivot and see the error of my ways is usually far too late to avoid any damage to my life, and to me.
I'll probably always be this way, a far too trusting person. I'm okay with that, I guess. But I really wish I were better at assessing and discerning the heart and motives of people BEFORE I get involved. We all have our flaws, I suppose.
As I wait for the sluggish process of diagnosis beyond the AIH, I'm left far too vulnerable for my liking. There are days I can't walk well, verging on not at all, and days where lifting my arms to look at my phone is almost too much. The weakness grows more each day and the doctors I need to see are weeks out of reach since I'll be a new patient. The waiting is going to end me in the ER at some point, I'm afraid. But the worst of this is being this sick and living in a place where I know absolutely no one at all.
T only helps around here bare minimum, and as the chores, etc. pile up... I long for the simplicity of the life I had in Mobile, where I didn't have to clean up after another human who refuses to do what's necessary to not live in a dirty, cluttered house. I can't live this way, so I struggle to pick up the slack. And I'll tell you, the slack is far far more than what T actually does.
How the hell did he survive on his own?
I have to somehow find my way home--wherever that is. I know I can keep struggling a little bit to find my way here, to at least hang in there until I'm better---or at least better enough to survive, to move, to do something to help myself. At this rate I don't know if I can work, which scares that crap out of me. Disability requires a definite diagnosis, and at this time I don't have one that explains fully how I'm continuing to weaken and become more and more sick. What can I do if even typing an entry like this makes me shaky and nauseated with weakness?
I want to be well again, to feel good again, to have energy again. I want to be in a position where I can find my way back home again.
Home. I just want to be... home.
Thursday, April 7, 2016
MIA
Prednisone and immunosuppressants are the go-to protocols for nearly all autoimmune diseases. At the highest dosage of 40mg/day I felt amazingly well, energetic, and somewhat strong again. It was about as close to 'normal' I've felt in years. With the first taper I began to feel badly again, but eventually had to come off with a slower taper which ended about a week ago. AZA (Imuran) was added along the way and is something one is kept on long-term to stave off flares of the disease, in my case autoimmune hepatitis -- don't confuse this with visual hepatitis (hep C for example). This is an autoimmune situation in which my immune system thinks my liver is a foreign body that needs, well, killed off. Overlapping AI disease is also suspected here, but symptoms cross over and overlap to the point where it's difficult to tell what else is going on. Myositis or Sarcoidosis are suspects here given my aldolase was highly elevated more than once, even on the medications. It is within normal range since taking the imuran in higher doses.
FAST FORWARD...
I don't know which is causing this horrid weakness and fatigue, and other symptoms as well, so I opted to call the doctor to TELL him I'm stopping the AZA for a time to see if that's the culprit. His response was agreement, BUT he wanted me to restart the Prednisone at 60mg per day! I told the nurse on the phone, who relayed the message to me, that I wasn't going back on prednisone because the side effects were intolerable and it causes so much weight gain, which I've just now begun to lose. I'm not going back. She said she would relay the message to the Dr. I have an appt with him next week and know I'm going to have to give push-back because I'm UNWILLING to take prednisone again.
I've just stopped the AZA yesterday and am not doing well as I'm still weak, fatigued, and wanting to sleep most of the day. I have a feeling some of this will improve as the AZA leaves my body.
I know the risks. I know and accept that I could have a big flare of AIH and my liver could be damaged because of it. But here's the thing: I have to wage longevity with quality of life, and in doing so have come to the conclusion that I simply can't have both. I'm choosing quality over quantity.
And hey, for all I know it could take a couple of years before I have a flare again. But as for any other AI disease going on, be it Myositis or Sarcoidosis, no one has given another diagnosis as of yet so there's little reason for me to worry about those possibilities. Having been on the treatment protocol for those, because it's the same as AIH, it's going to be tough trying to diagnose either due to my taking prednisone and AZA for this long. Even so, all I can do is see how it goes moving forward.
I'm actually quite surprised that I can event type, because the last several days I've barely been able to hold up my iPhone while laying in bed due to the weakness. You've no idea how bad the weakness is.
Another thing I have to deal with, which I'm not sure is a bad thing, is the loss of appetite. I mean, I've gone back to FEELING that I need to eat, where my body gives physical signals that I may need nutrition but don't have actual HUNGER. Also, this is the third day where it's not just a lack of hunger but also very early satiety. I've been taking in less than 1,000 calories a day, which I will pay for dearly if I'm not careful, especially if I'm dealing with Myositis. But that's another talk show.
So for now just know I have to play it by ear and see how I feel, because I may not be able to post here every day---though I do hope I can because that means I'm either feeling better or one tough chick for posting when I feel like I'm going to fall off the chair any moment. ;p C'mon.. that was funny. See? My sense of humor shows up every now and then.
How am I managing through all of this?.... well, I have to admit that's a whole other talk show....
Wednesday, March 23, 2016
I can hear it in my dreams.
I sometimes see images online, hear stories from people, stories that pique my curiosity in that I see and hear I can't connect with in any real way. "So this is life?" is the outcome, the question that remains unanswered but accepted just the same. My reality, my life doesn't in any way reflect what I see out there in the world. This kind of thinking only leads to a pointless series of "What if?" scenarios that didn't, nor will ever, ever happen in what remains of my lifetime. Such a useless response, isn't it? I definitely think so.
I've gotten to where I really hate dreaming. I hate waking up from them even more, to be honest. Again, I find them completely useless.
Damn. When will the clouds lift?
Tuesday, February 9, 2016
Shhhhhh.
I'm heading to my oasis in a moment, a room I use as my 'Girl cave,' a place that is inherently me in all it contains, inspires, and presents. My own place where I can retreat, nap, contemplate, and create if I had the energy. It's a good place. A very very good place. I feel at home in there, more at peace. It could just be the decor, all the familiar items from my former life of 2 years ago, the soothing familiarity invoking that feeling of "Ah." It's really my space and I am very protective of that space, I promise you.
So I took that Lasix for the first time a little while ago and am waiting for it to kick in. This means I'm retreating to my room where I can be near a bathroom... yeah, it's a very powerful diuretic, prescription, and boy is it going to keep me busy this afternoon. It's okay.. because it's needed to combat the prednisone water retention, which is making my BP shoot up in the are of 194/82. NOT a good BP reading.
Time to head into the other room...
Okay, bladder... let's do this!
Yikes!
Tuesday, January 26, 2016
Family--Beating My Head Against the Wall
I was a "Mistake," according to my mother. Now, my relationship and experience with my mom is a story in and of itself, and honestly... I could write a novel here about that. But I'm not going to. Let's just say my mom was disconnected by the time I was born, old enough to be my grandmother, and about as unplugged as a parent could get. It was easier to micromanage and control everything to a damaging degree, rather than create experiences that may have given me a chance and coming out on the other side with less 'issues.' Yes, of course I have issues, and in a way it was my mom's only legacy.
How is it that I could know little of nothing, if anything, about anyone in my family tree? Well, that's easy--when you don't answer questions, share nothing, and ensure that not a single photo, letter, information, etc. gets passed down to you... well, you can't ask a dead person questions. Point blank, not pretty, but absolute truth just the same.
Everything from health/medical information was shared primarily with ONE of the 6 children, and I wasn't the one who got the information. My eldest sister was my mother's confidant, her go-to gal, and there was an almost too-close relationship between my mom and my oldest sister (old enough to be my mom). I spent my entire life on the outside, looking in, and it was that way until my mom passed away (over 20 years ago now).
One sister and I shared a dad, and my other siblings share a father form my mom's 1st and only marriage. Yep, my other sister and I were illegitimate. I could really care less about that, to tell you the truth. My dad was out of the picture when I was 18 months old, and my mother really never spoke of him or his family except for some really scary things, very dark and scary things. Now, it shouldn't surprise anyone that if you scare a kid like that, they're most likely not ever going to ask too many questions. This was the case with me.
The siblings who had a different dad hate me. Just the truth. I was even told that one reason they despised me was that, because we were very poor, they often didn't get as much milk (the example used by one brother and sister) because when it came down to the wire... "The baby" (me) needed it more than they did. I can't speak for what happened when I was a baby. I can't apologize for something that I didn't do on purpose. Yet that resentment carried right into adulthood for my 3 brothers and one sister. BTW, I don't really think of them as brothers and sisters because they've not treated me as such throughout my life. What memories I have of life with them.. isn't good.
I was born very late, with my mom being in her early 40's when she had me. All my siblings (but for one) was grown and gone and with kids of their own, so I pretty much grew up like an only child from about age 10.. when one of my sisters married and moved out (she was 16). We lived in a 3 bedroom house that was eventually condemned, and my mother (a hoarder) used all 3 bedrooms as her hoarding rooms. My sister, the one I share a dad with, had her own room, lots of 'stuff,' decorated walls, record player, records, clothes, and a bike. I didn't have enough toys to even have a toy box, so even in this respect I would find myself living an entirely different life than my sister... and everyone else, actually.
My mom was absent, indifferent, cold most of the time...and even cruel. Skipping over more details than will fit here, I will say that my childhood was very, very odd, and the damage done has proven to be long-lasting. Still, I spent my life longing for a family, a REAL family. Now, coming from a family with 3 brothers and 2 sisters you would think that a strange thing for me to say. Aunts, uncles, cousins... really had nothing to do with me, but for one cousin who, I guess, simply took pity on me. I felt the hostility from them all growing up and didn't understand any of it at all. I felt it, saw it, heard it, and experienced that hostility until we moved away from California. We moved to Colorado because my oldest brother wanted my mom to move there so she could babysit while he and my SIL could work. I was in 8th grade when we moved, and my life didn't get better at all.
Longing for a real family... even to this day....
I would eventually move away from the state of Colorado. My kids and I, to make a long story short as possible, ended up here in the south along the Gulf Coast, where we settled into that strange place (strange to us because we weren't from there) and would end up calling the south "Home." It's the only place that ever felt like home to me. I'm still in the south, but a little further north by a few short hours. But back to "Family"....
When my mom passed, naturally my eldest sister got everything. Very important items my mom was holding for me until I could send for them were divided amongst my brothers and sisters and nephews... or just tossed out as garbage. They did this QUICKLY after my mother died, the day they found out, using the excuse that they were sure that since she was on disability, got a veteran's widow pension, and on Medicare, etc... that the 'government' was going to come in and take her stuff. Yes, LUDICROUS, but that's the excuse they used. And when I arrived for her funeral I wasn't even allowed to so much as have a photo of hers. My eldest sister 'allowed' me to take ONE photo to have it photocopied. My mom had boxes and boxes of photos, btw.
Few actually had anything to say to me at the funeral, or after. It was the same shit, different day.. only worse. A few years later I'd tried once again to make some kind of connection with them, but it ended in a total disaster. I finally came to my senses and realized that I was the only one putting in any effort and that it just simply wasn't worth it. I basically told my oldest brother and his bitchy wife to piss off. And yes, it felt great and was LONG overdue.
In the present....
I know pretty much nothing of my family history, my family tree. My last living grandparent died when I was 2 weeks old, and everyone else was so much older than me that no one really had anything to do with me. My mom wasn't really forthcoming with names, histories, etc., though she did incorporate some names and such in a few fun stories she would tell from time to time. But as a little child I really had no idea if she were making the stuff up/telling fairytales, or if the information was actually true. And after my mom's death... the information about grandparents and such were simply not given to me, even if I asked. Photos, etc.... all given to my sister, who claimed some neighbor stole them, were lost. My brothers, etc. chose badly when they decided to give my sister everything. One person said they thought my sister pawned or sold the framed antique photos of grandparents etc for money. Sadly, it sounds exactly like something she would do.
The cruelty extends into adulthood....
When one of my brothers passed away a few years ago I was told about this AFTER the funeral had taken place, and... I was told on Facebook by a distant cousin. She apparently looked for me on Facebook with ONE purpose in mind, and that was to send me a message that read.. "B**** passed away last week. Thought you'd like to know." I asked "How/why?" which lead to her replaying in the same short, blunt fashion. She then disappeared and didn't say a word ever again. I'd written back a couple of times.. with no response. I'd written my nephew as well, and have been ignored. And this nephew I grew up with and was very close to most of our lives. He's only 2 1/2 years younger than I am.
Cruelty was their favorite weapon, and continues to be so.
The family tree...
As someone who feels completely disconnected from 'family' or blood ties, history... it only stands to reason that I would, eventually, WANT to know something about my own family history. SOMETHING. ANYTHING. So when I decided to look into www.ancestry.com I felt like I was taking a step in the right direction. Maybe this site could help me put the broken pieces together in such a way that I would at least see my connection within the bloodline.
What I've done...
I created an account at www.ancestry.com over a year ago, but since I wasn't really willing to invest any money into getting a full account, I've only spent the smallest bit of time there. But that changed for me about a week ago when I saw a commercial online for Ancestry and a DNA test they offered that shows where your bloodline is from, at least in percentages. A lot of folks have jumped on board for this. Now, one cool thing about the DNA test and having a real account (which I don't yet) is that you can set your family tree to allow links between matches for DNA, region, etc. It's a lot more complicated than that, and they have a video that explains it all, but it's a really neat tool and a good place to start. But what about for someone like me?....
DNA results may be the only thing I really get out of this, and that's okay. It's something, isn't it? It would be nice to know for sure what ethnicities are involved in my family tree, even if I don't have any family history to see how the pieces fit. I sent my kit off today and, from what I understand, it will take about a week for the results to get uploaded online. Knowing it's not going to give me complete picture of my family tree... I'm still okay, and I'm fairly patient where that's concerned.
So what's my freaking point here?
My point is this: If you have information about family history (names, places, etc) please share them with your kids. Don't leave them in the dark to spend the rest of their lives wondering who they really are (history wise), where they're from, what their history is, etc. It's really not a good or easy thing to live with when you have no idea about those things. Don't do that to your kids, seriously.
My desire to know more about my family history/ancestry runs deeper than the hurt from the disconnection from my actual 'family members.' I rarely use the word 'family' when speaking about them. They're blood relatives to me, but nothing more.
I have to wonder if I'm beating my head against the wall trying to piece together a family tree I know nothing about. Names, birth dates, etc. are required to even do searches or make connections. What little information I have really just stops at my mom, and my dad I have only a name and birth date. It's really like hitting a brick wall. But is it worth it, all of this effort? I don't know.
I really just don't know. The one thing I DO know is that I'm left with the question: Will I ever fully understand myself in connection to history and ancestry?
*shrugs*
Wednesday, January 13, 2016
For those who've left comments... THANK YOU!
So it seems comment notifications haven't been working in a VERY long time, so if you've left comments and I didn't reply please know it's because I didn't realize anyone had left any. Blogger seems to have fixed this.. for now.
I appreciate everyone's feedback, more than I can find words to describe really. I guess, with the exception of those I know 'in person,' or those who contact me via social networking or email, etc., I often wonder if I'm just shouting or whispering into the wind here.
It was my hope that sharing my own experiences would help others, or make people laugh, or think... well, then it's all well worth it, especially with regards to "This Free Spirit," which was created to help work my way to a healing place post-abuse and hoping to help others along the way know they're not alone.
So again, if you've left comments on any of the entries on any of the blogs and I haven't respond.. I will. And hopefully Blogger's notification system re comments will continue to work!
Blessings and thanks to all of you...
I appreciate everyone's feedback, more than I can find words to describe really. I guess, with the exception of those I know 'in person,' or those who contact me via social networking or email, etc., I often wonder if I'm just shouting or whispering into the wind here.
It was my hope that sharing my own experiences would help others, or make people laugh, or think... well, then it's all well worth it, especially with regards to "This Free Spirit," which was created to help work my way to a healing place post-abuse and hoping to help others along the way know they're not alone.
So again, if you've left comments on any of the entries on any of the blogs and I haven't respond.. I will. And hopefully Blogger's notification system re comments will continue to work!
Blessings and thanks to all of you...
Thursday, December 31, 2015
What is worth more than this day?
I've been blog by blog, fueled by a little too much coffee this morning. And yet I feel accomplished as I discover that, once again, my mind has cleared a little (thanks to the Prednisone??) and I'm able to get my thoughts out. My other blogs, well all of them, are being filled with ideas, expectations, hope, contemplations... and I am feeling uplifted for the moment...
It's another day. It's another day living with an autoimmune disease that is far from reaching remission. I know the deal, summon the patience needed to accept the situation and it's processes, the time it will take to reach remission. 1-2 years. I can do this if I focus. Yes, there will be good days and bad days and struggles and set-backs, but there will also be victories. It is what it is.
Acceptance.
Today began a little rough, not feeling well in the least. However, and maybe not the best idea, I used a bit of extra caffein to boost myself to the next level here. It worked. So far it worked. I can't do this every day, obviously not healthy, but I can do it when I need to.
Today is a good day. And I'm going to get some things done. Are there obstacles? Yes. Always. But that's life, isn't it? In the meantime I will take advantage of what energy I have, even if it is caffein-induced, and I will use it for what needs done. Oh but I would love to have a take-it-easy kind of day, actually NEED that. But not today. Not today.
So I will listen to music, have this last cup of coffee, and find the drive and determination to complete tasks that are, quite frankly, not the easiest things for me right now.
I'm tired. So tired. But today is a good day. And I'll take that.
Monday, November 30, 2015
Ever-Wondering Why I Bother to Give a Damn
It was a long holiday weekend filled with packing, moving a few loads over to the new house, and lots of anxiety having to be around T for that long. I'm not being mean here, I assure you, but the magnitude in which he's "just not there" is ever more apparent when we're around each other too much. And honestly, it drags me down and wears me out beyond words. Not sure how I can handle this much longer.
I try very hard to be patient and understanding, but it's nearly impossible to feel those things when the other person is simply not trying at all. I'm a ghost in my own household (notice I didn't say "home"), and the weight of being absolutely trapped is taking a tremendous toll on me both physically and emotionally. Life isn't supposed to be this hard.
He's supposed to go visit his family in Florida next month, and no.. I'm not going. By choice. I'm simply not up to that long drive right now, and honestly... I really need the time alone; maybe I'll be able to breathe for once. I'm a little scared I'll like being by myself much more than I realize. Though it really wouldn't surprise me...as I crave space, peace, breathing room, a place to stretch these broken wings and try and remember what it feels like to fly.
...It was another weekend with my pointing out all the ways he tries to control me, how he treats me like a child, how he doesn't respect me... and as always it falls on deaf ears. Oh, he vehemently INSISTS that he understands what I'm trying to say to him, that he gets it, that he will try harder, and so on..and on..and on..and on. His words mean very little to me anymore, and his WORD... means even less.
I can't rely on him following through.
Honestly, I could understand his not being able to follow through on some things if there were a REASON. But there's not. He simply just... doesn't. And it's very telling.
In the meantime I try desperately to hold on, to remember who I am, to remember my dreams, wishes, hopes, goals, and to remind myself that my needs matter too. I also have to work on not being completely rolled over by him when he does this; and I have to say it's nearly impossible. I mean, let's face it---I'm not the toughest person, and I'm sensitive to both people and environment. And my environment right now is NOT conducive to happiness, joy, OR healing; three things of which I need desperately in my life.
How the hell did I get here? Rhetorical question, really. What I should be asking myself is 'How did I get here AGAIN?!'
Okay, so truth be told I'd have to say I HAVE asked myself that question and know how I got here again. I'm not in the awful places that I've been in the past with relationships, but this one isn't healthy for me at all. So what do I do so that I can thrive, live, and be able to breathe in my own space?
That's the million dollar question, isn't it?
And I'm working on that...
I am. I have to.
HAVE to.
I try very hard to be patient and understanding, but it's nearly impossible to feel those things when the other person is simply not trying at all. I'm a ghost in my own household (notice I didn't say "home"), and the weight of being absolutely trapped is taking a tremendous toll on me both physically and emotionally. Life isn't supposed to be this hard.
He's supposed to go visit his family in Florida next month, and no.. I'm not going. By choice. I'm simply not up to that long drive right now, and honestly... I really need the time alone; maybe I'll be able to breathe for once. I'm a little scared I'll like being by myself much more than I realize. Though it really wouldn't surprise me...as I crave space, peace, breathing room, a place to stretch these broken wings and try and remember what it feels like to fly.
...It was another weekend with my pointing out all the ways he tries to control me, how he treats me like a child, how he doesn't respect me... and as always it falls on deaf ears. Oh, he vehemently INSISTS that he understands what I'm trying to say to him, that he gets it, that he will try harder, and so on..and on..and on..and on. His words mean very little to me anymore, and his WORD... means even less.
I can't rely on him following through.
Honestly, I could understand his not being able to follow through on some things if there were a REASON. But there's not. He simply just... doesn't. And it's very telling.
In the meantime I try desperately to hold on, to remember who I am, to remember my dreams, wishes, hopes, goals, and to remind myself that my needs matter too. I also have to work on not being completely rolled over by him when he does this; and I have to say it's nearly impossible. I mean, let's face it---I'm not the toughest person, and I'm sensitive to both people and environment. And my environment right now is NOT conducive to happiness, joy, OR healing; three things of which I need desperately in my life.
How the hell did I get here? Rhetorical question, really. What I should be asking myself is 'How did I get here AGAIN?!'
Okay, so truth be told I'd have to say I HAVE asked myself that question and know how I got here again. I'm not in the awful places that I've been in the past with relationships, but this one isn't healthy for me at all. So what do I do so that I can thrive, live, and be able to breathe in my own space?
That's the million dollar question, isn't it?
And I'm working on that...
I am. I have to.
HAVE to.
Wednesday, November 25, 2015
The Non-Gift Giver and The Gift of Giving
Gifts. Depending on the person gifts can hold different meanings, different associations, and have very different affects. Some people are very hard to please and require expensive gifts, while others are quite content with small items with big meaning. I fall into the latter category. To me, a well-thought-out gift is worth more than all the jewelry, diamonds, or money in the world. If someone where to give me a crazy, unique, or spooky stuffed toy... then they've given me gold. I'm not that hard to please. Having said that, what about those who live with someone who isn't a gift-giver? How does that work? Well, that depends too....
Know who you're with. Sounds easy, doesn't it? Well first off let me say that for the sake of this conversation we're going to talk about men--men who aren't gift-givers and what it means. DO know that I fully understand and am aware that there are women like this out there, but the majority tend to be men. Women are rather hard-wired for being people-pleasers.
Know who you're with. You can't really choose a meaningful gift if you don't know who it is you're buying for. Well, you can sometimes come close by focusing on trends for particular age groups and gender. But that's outside of the scope of this conversation. If you know who you're with, then choosing (or making!) a meaningful gift is a no-brainer. All it requires, really, is for you to actually give a crap. Blunt? Yes. And there's no reason not to be blunt.
Respect who you're with. THIS is the key, folks. THIS is what makes or breaks relationships. It's more than an ideal, it's a necessity. If you don't respect WHO you're with, you're doomed, dude. Plain and simple. Might as well give up right now, because that relationship isn't going to last. And if it does, it will be one miserable time for all.
Respect is the foundation for every single relationship in your life. It doesn't matter if it's home, work, family, friends, or enemies. If you have genuine respect for someone you're going to be pretty damn close to being on-target with just about every situation with them. I promise. The only time respect on YOUR part won't work.. is if that person doesn't respect YOU. But that's another talk show.
Respecting someone for WHO they are, and this is very important, means you KNOW who they are and ACCEPT them for who they are. If you don't get this, you're screwed. But getting back to the point--when it comes to gift-giving it's not about YOU, the giver, it's about THEM, the receiver. A gift isn't something you do for yourself, but something you do for another. And it's utterly shocking how many people don't really get this. Now, is there something in it for you, the giver? Of course! And that, my friend, is a very personal thing, so I'm not going to go into that here. But giving a gift is NOT about you. Know this first and foremost.
It's okay to make a mistake. For lack of a better word, I'm using "Mistake" for clarity and understanding. Even if you know someone well, you can choose the wrong gift in some people's eyes. Get that? In SOME people's eyes. I'm also not talking about people who don't APPRECIATE a gift, so let's not focus on that, because it too is another talk show.
You get the wrong size, wrong color, a music cd of a band you think she liked.. only to find out.. she hates them. It CAN and DOES happen! But the difference is.. how many times does it happen? A couple? And is it really an honest mistake on your part--because she's going to know.
If it's an honest mistake, a good woman is going to know. If it's carelessness, she's going to know. If you put NO thought into it (here's where knowing and respecting that person comes in), she's definitely going to know.
But if it's truly an honest mistake... it's okay. Either she'll be sentimental and suck it up and keep the gift, or she will exchange it. So.. how you react to those things are up to you. Just know that it's REALLY not a big deal.
I can't say I see any gift as a mistake. Well, if you buy me men's cologne.. then yeah, that's a huge mistake. lol But for the most part, the effort speaks for itself.
The guys who aren't gift-givers. Now this is a big one. And a complex issue. So I'm going to attempt to not make even more so. Some guys aren't big gift-givers, but they show love in meaningful ways. I mean, how can you fault that? You can't. Tenderness, care, compassion, friendship, being a good listener, being a strong support system for whatever is needed, and being her biggest cheerleader. Oh yeah, those things... are worth more than gold. And if you have that, CHERISH it with all you have!
The flip-side to this whole gift-giving thing is what's often lost on some guys. YOU may not be into it, but if SHE is, then why not participate in something that brings her joy? I can't speak for the situations where 'she' wants excessively expensive things, but I can say that for women like me, who are happy with the little things, it really wouldn't take much effort to make Christmas 'super cool.'
I'm with someone who isn't a gift-giver, and there are other issues that overshadow that. BUT, it would take very little to make Christmas an absolutely lovely affair. But T doesn't really feel ANYTHING about the holidays, outside of a religious nature that is, and so I'm left to putting up a tree and decorating by myself. This wouldn't be such a big deal if T appreciated any of it. Last year the tree was decorated, as well as a couple of rooms, and he walked through the door and noticed not a single bit of it. It was a surreal and strange experience, and one I'm not willing to go through again. So this year, I'm decorating for ME. What this means is I'm decorating the tree and house the way I want to. Well, given my health isn't kicking me in the ass too much to actually decorate. Just know this, guys, when things get to this point, when she's creating all the experiences and memories by herself... she's literally living 'by herself' in your presence.
When she's creating all the experiences and memories by herself... she's literally living 'by herself' in your presence.
I'll let that sink in a moment...
There are men out there that literally have no appreciation of the gifts given to them, the time, effort, money, etc. put into choosing just the right thing. Seriously, guys. even if it's inexpensive, it should still be meaningful and memorable by you. Some guys show their utter lack of appreciation for gifts given to them by actually FORGETTING WHO GAVE THEM THE GIFT! And oh yes, this happens. In my own experience... I gave a gift to my ex, a bear, and he GAVE IT BACK to me a year later.. as a gift! He 'thought' he'd bought it. But I actually had/have photos of when I chose it, purchased it, and took it home. I hand-delivered this gift to him, and he didn't even remember who gave it to him to begin with. And to make matters worse is---his 'shopping' in the stuff he had around the house to find me a Valentine's Day gift. Wow. A hand-written love letter would have blown me away, and it would've cost nothing but a few minutes of his time. *sigh* Guys... don't do this to your wife or GF.
If you're a guy who isn't a gift-giver, consider trying to do that for her. Maybe it doesn't come natural to do that, but it can become a sweet habit if you simply... practice. Don't have the money to buy her a bouquet of flowers... buy ONE! Buy a rosebush and plant it for her (the gift that keeps on giving). Whatever it is you do, put thought into your choice, make it say "I know you," "I see who you are and I love that about you."
Thoughtful gift givers put actual thought into the process, don't overly focus on cost (staying within budget, though) but on choosing something that fits that person, watch for clues as to what might be the perfect gift for that person, plans ahead--doesn't rush out at the last second and choose whatever's easiest, and makes their choice from the heart.
Not a gift-giver and unwilling to try? If you simply can't be a gift-giver, then at least get out of the way and let her buy her own gifts.
It's really simple when you think about it.
Monday, November 23, 2015
I can't believe I actually did this
One can spend a tremendous amount of money getting this book made, depending on how far back you want to go. The limit is about 500 pages, which can cost a bit over $100.00.. however, you can get the smallest version for roughly $20 + tax. And that's exactly what I did.
I opted for the soft-cover version to save money, but it's actually pretty nice. You get to choose your 'cover' and pic you want on the front, and you have some control over what's printed, and YOU choose the time frame if you're doing more than one year.
It was kind of funny, parts of it, and other parts are sweet....
Overall, I'm glad I did this. :)
Either way, I would actually recommend people doing this if there's anything you want to place in a keepsake. I'm really digging mine and am considering getting one from 2013, and maybe one from my old profile from back in 2010, 2011... just not sure yet.
Oh, and your stickers and emojis also show up on these pages. I mean, pretty much everything when it comes right down to it.
Again... very glad I did this.
No regrets. :D
Wednesday, November 4, 2015
PART 2: Selfishness as a matter of convenience (Where's the respect??)
I'm unimpressed. I'm completely unimpressed by T, and by the way most guys treat women. In my particular case, the disrespect is dehumanizing, demoralizing, belittling, and disappointing beyond anything I've known. It's not just this relationship, but in the past as well. My choices have NOT been the greatest, and my guess it's because I'm trusting and take people at face-value. This is NOT a good thing. At all.
As of yesterday a new low has been established, and I'm in no position to do anything about it. Thus is the case when dealing with control freaks who refuse to see that they're actions are completely selfish and self-serving. DON'T VOLUNTEER to do something for someone if you're only going to use it to gain control over that person! DAMN! How hard is that to understand?
All my doctor's appointments are now between my doctors and T. Why? Because ALL appointments aren't about what's necessary, or needed, or critical, or about doing tests etc in a 'timely fashion.' Nope. NOW my appointments are about what's convenient for T. It's about what he does or does not feel like doing, what works with his schedule (he's been told he needs to use a lot of his leave or lose it), and none of it has a thing to do with... me, you know, the actual patient.
Yesterday was a disaster, stressful beyond reason, frustrating in that I'm basically told I no longer have any control on when or what time I get an appointment. *sigh* One major symptom of late makes it dangerous for me to drive much beyond a few miles of my house. Dizziness/vertigo doesn't exactly translate into "safe driving." So I'm stuck for the time being, screwed beyond reason, because I have to wait for T to decide when I can see my ENT or Neurologist regarding the severe tinnitus, vertigo and dizziness that's come on over the past couple of weeks. I sit. And I wait. For HIM to decide when it's a good time to see the doctor about this.
Why the F***K am I here????!!!! Being here is unhealthy, both physically and emotionally. It's detrimental to my health and well-being, and the inner workings of living in this house with T has destroyed my quality of life.
Now, some of you know my recent history with relationships and know what I've gone through. I also know what you're most likely going to say to me and expect that email eventually. It's okay. Send it on. Maybe I need to hear that.. 'again.' ;) Either way, you're most likely seeing something familiar in all of what I'm writing, in which case I will say... I do too.
More later. I promise... the flood gates are open now...
Finally.
Tuesday, November 3, 2015
PART 1: Selfishness as a matter of convenience
Convenience. Everyone understands this, right? I know what it is. You know what it is. And this, like selfishness, has a hierarchy in which you determine what is right and what is wrong. That really should go without saying.
I'm getting to the point here, but I'm also indulging in non-emotional verbiage in order to get control of the raging emotions within. It's NOT easy, I'll tell you. Just bear with me for a moment as I attempt to gain a little control here before going off completely.
I've spoken about my health issues, so many of you know some of it is a bit on the scary side. I don't sit around in fear worrying all of the time about it, but I also don't completely ignore it thinking things will miraculously get better. The way things are right now I wouldn't wish on my worst enemy. Truly. I never thought I could feel this bad.
Today....
Things began in the usual way, with me trying to drag myself through a few mundane tasks and telling myself I'm going to get better, while in the next moment wondering if I can stand even one more day of it all. Not just the health issues, which are awful, but with this 'relationship' (for lack of a better descriptive word). I believe a person can deal with just about anything if they have a strong support network (which I don't), and also if their physical environment is conducive to healing If your living environment is stressful, depressing, hollow, empty, uninspiring... and more, you will have to do some serious magic to pull yourself up and out of whatever awful place you're in, both emotionally and physically/medically.
I have yet another CT w/contrast to go through. This one is for my lungs, to further evaluate the nodule, the unexplained scarring, etc. They had to put it off for about 3 months because I had a CT without contrast, which means they couldn't get all the information they needed. Honestly, it worries me how many of these imaging sessions I've had. Too many. But it is what it is.
My pulmonologist's secretary wasn't aware that I had a CT scheduled for the 18th, so when I called about some other test results (that aren't back in yet), she told me that she needed to make the appt for me. She chose the 9th. When I sent T a text to let him know when it was, he immediately went to "THAT" place where everything becomes all about convenience. What it really comes down to are priorities and where I am on that list. Where am I?...the bottom.
Some appointments I can't drive myself to and from, because they require someone to drive me. T has an enormous amount of accrued leave time available, about a month actually, and so if he has to take me to an appt, etc., it doesn't do any financial harm, and his boss has already said he needs to use some of that leave. He volunteered, and now he wants to complain about the dates and times of my appointments. SO... today I made a decision....
I told T that from now on my appointment will be between HIM and the person setting the appointment. I'm going to completely remove myself from the process because it seems these appointments are really about my health, but what is convenient for HIM. What was his response? "Okay." He feels pretty good about himself right now.
There's really no other way to take this situation, no other way to see it other than what it EXACTLY is---selfishness in full swing. Never mind that the doctor says he wants a test or procedure done by a certain time, as soon as possible, etc. It's not about that... at least to T. And he refuses to care that the longer these things are put off the longer I will be this sick. Things are completely out of hand in the world of control freaks. It's the truth. And why the F**K do I always end up with control freaks anyway? Well, it's not been in every relationship---there've been ones in the distant past that weren't like that.
And please, don't make the mistake of equating selfLESSness with buying someone things. There are FAR FAR greater kindnesses, trust me. Such as--treating someone with kindness and respect, being there for them when things are bad, listening to them without judgment, and actually putting their health, happiness, etc... ABOVE what's CONVENIENT.
Do you think being sick or dealing with a chronic illness is CONVENIENT for the person who's sick? HELL NO! No one wants to be this sick, so sick that they would do ANYTHING to feel better. NO ONE wants a shitty quality of life. So when you (using the word "You" loosely here) indulge in the 'This is so inconvenient for me" for me mindset, you're showing your true colors and actually causing harm to the person who's sick. I mean, if you can't muster any empathy, compassion, or caring, if your give-a-shitter is THAT whacked, then by all means remove yourself from that person's life so they can HEAL!!!
In all honesty, I remember the last relationship I had where I DIDN'T feel as if I were better off alone, and it was a LONG LONG time ago. Since then, I've usually ended up in a situation that left me feeling like the very best thing for me was to be single, because there was a total absence of health-destroying stress. And I don't think I have to go on about the levels of stress, the differences between that which motivates and that which can kill.
I can't fix someone's lack of compassion. I can't explain to them (where they'd get it) that buying something for someone who needs emotional support, love, compassion, etc... only makes themselves feel better. Because it surely doesn't do a damn thing for the person who's suffering.
No offense to the guys reading this, but... if you're one of those men who find yourself saying "I bought x, y, z for you, so I DO care!"... then you may have a problem. UNLESS that something you bought actually changed their life long-term.. the way true kindness and compassion does. Not to say that gifts can't represent compassion, etc.. because they often do. But you have to pay attention to what that person really needs, what they communicate to you. Because when you don't, you miss the mark.
I'm angry right now because my situation, my health, etc. isn't being taken seriously by T. It's damaging, stressful...which makes it more damaging. "I" take it seriously. My doctors take it seriously. But T continues to do things that either undo all the work I've done thus far, or he does things that literally thwarts my efforts.
..... PART 2 will be next. I have to gather my VERY scattered thoughts at the moment.
Friday, October 30, 2015
What I learned
NO!
I can only take so much.
The sticking point for me these days is a past that comes back to haunt me. As I've said before, closure in situations of loss is necessary, no matter WHAT people try to tell me (and themselves). You can't push it aside, or bury it deep, or completely ignore it because it absolutely WILL drag you down to the depths of hell-on-earth while you may be completely oblivious to the signs.
I am well aware of why I can't get closure. I've been told why, but it was unnecessary. It took a few steps, introspection, and I had to take a huge step back to see the truth. When it finally came into focus I was completely taken aback by the sheer force of what I was shown. My God, how did I not SEE???!!
All that confusion, all that not knowing who the hell he was from one day to the next, all that unrecognizable behavior, the words, the everything. I didn't question, and that was my first mistake. I put the rose-colored glasses on and blissfully went through the world in a daze of utter ignorance to my situation, of who and what I was dealing with. Oh, I've stopped asking myself WHY I did it, because I've gone past that and know better now. But I still have so many times when I mourn the loss of that person...
Mourning still because there wasn't anyone to say goodbye to. Why?... because I fell in love with someone who didn't exactly exist!
This revelation, when it came, knocked the wind out of me and created a sense of loss unlike anything I'd ever known. Why did it hurt so much? Why did it take so long to let go? Why does it still haunt me today? The reason is stated clearly above, and it's impossible to say goodbye to someone who never existed in the first place.
So who the f**k did I fall in love with? Not sure, really, as I didn't exactly get to know him that well except for the dark stuff.
How did I manage to move on?... Well I've not moved on totally, which means I haven't moved on. Strange as it may sound BOTH are true.
I just keep working through it--the confusion. I mean, what else is there to do? There was never any closure to allow me to move to the next level and stay there. The grieving process for breakups is the same as when someone dies, and the process is rather circular... at least for a time. Back and forth you go through the stages until you reach the final stage that sets you free--acceptance. While I ACCEPTED the situation for what it is, accepting the breakup isn't exactly what happened, because I'd no idea WHO it was I broke up with. The person I was in love with changed SO drastically that it took my breath away--and in all the WRONG ways, I assure you.
The less I recognized him the more confused I became, and a part of me continued to search for the person I'd fallen in love with. This was the cycle I was trapped in while still with him. While blindsided by the behavior, the sneaking around, and so forth... I still forgave because I was erroneously convinced that he was still the person I fell in love with. Yet, I didn't SEE anything at all that I actually recognized! Nothing at all. The face was the same. The voice was the same. But everything else---NOT at all recognizable.
Look, I know people go through events and situations in their lives that change them for a short time; but eventually they get back to themselves again. Also, the person they are shines through despite what's happening and the resulting behavior etc changes. I get this. I've gone through it myself. However, the absence of ANYTHING recognizable in that person was the most perplexing part of the whole thing, leaving me to ask inwardly and often.... "WHO are you??!!"
I still learned much from the ordeal, and I know exactly what I won't deal with ever again. I also know exactly what I want. No one is perfect, and I don't expect perfection, but I do know what's right for me... now.
More on this later....
Sunday, October 18, 2015
PART II: You can't treat me this way
Give me enough space and I will build a universe! And yes, L, you may quote me on that. ;)
Even when I resort to the introvert side of me, or if I'm venting in order to sort through the muddle, I'm a LOT stronger than you think. Don't underestimate me, because others have and discovered quickly that I don't require their help, blessings, or support in such matters. If it comes down to the wire... I've got this!
Yes, it would be nice to have people close to me who are supportive. But I've long since learned that it's not an actual requirement in order to succeed at my goals. of course, there is a lot that's to be said about having a good support network when you're going through difficulties. Still, if that network and support isn't there, I have to resort to my own devices.
This is where I am right now.
....Will continue this soon...
It is said that even the strongest of feelings expire when ignored or taken for granted. And this is not the first time I've felt those feelings die inside me....
Don't let anyone tell you there's anything wrong with talking to a therapist. A strong person will look for expert advice when they feel stuck, as I did. While I spoke to her for only a short time, what she revealed to me would forever change my life. I now have tools at my disposal for not only recognizing that which harms me, but also for ensuring I don't become easy prey again.
People cause harm in many ways, right? But we don't often recognize what's happening until the damage is done. The real trick is to stop things before the damage becomes permanent on ANY level. I was only somewhat lucky in that, but the parts of me that were deeply harmed are now the strongest. Go figure. I guess the cliche we all overuse to some some degree actually has merit.
Intention. So this is something we humans also focus on when assessing where we are in a complicated situation. We ask ourselves 'What did they mean?' or 'Did they really mean that?' in scenarios where we're blindsided by the harmful actions or words by another. No matter if I question the other person's motives, because I've learned to ask myself the more important questions: "Am I okay with this, and if not, how am I going to handle things?"
My striving for better health while doctors give me medications that literally counteract that goal means I have very little tolerance for bullshit these days. In this present state of body and mind I have absolutely NO PROBLEM asserting myself. And I will tell you that this is something quite new for me. Somewhere along the line I grew one hell of a backbone. I'm more than okay with this, btw.
Oddly, since being with T I've evolved to focusing less on "love" than on respect and humanity, compassion and kindness. I never EVER ask "Does he love me?" Because, honestly, that means nothing to me right now. I don't equate love with gifts, material things, money, or even someone's physical presence. No, because those things mean nothing if the motivation behind one's actions are self-serving or indifferent. And yes, people CAN give you material things, money, even their time... and not have your best intentions as their motive. I will never be swayed by 'stuff,' nor by someone who feels as if they're doing me a huge favor simply by 'gifting' me with their presence.
If someone is here and yet 'not here,' being alone is far more peaceful, healing, and promoting of good physical and mental health. It's just plain unhealthy to be around someone who is barely, if at all, actually 'there.' But what does this mean, exactly?
A person has the ability to be present while not saying or doing anything. You can sit quietly next to someone and feel their presence. It's unmistakable if you're paying attention. Unfortunately, I've been 'empathic' my entire life, and even as a child I could strongly feel when someone didn't want me around, was angry with me, etc. I assumed everyone was like this, and boy was I ever wrong. Even so, coming to terms with that part of me as an adult was both easy and difficult, because I really didn't know WHAT I was to do with that information.
I can filter somewhat, but not very well what I feel from others.
When being misunderstood becomes a major stressor:
This is a big peeve of mine. Communication breaks down if one party is always over-scrutinizing what the other is saying. Wth can't people just, you know, LISTEN? Why do some people allow the wheels of overthinking to kick in and destroy what would otherwise be a productive conversation? I will never understand this as long as I live. Honestly, just listen to what the other person is saying before you pass judgment on what you THINK they "mean" by their words! I've dealt with this way too much over the past few years, and I'm more about a 50/50 conversation that both people are not only participating in, but equally open-minded in as well.
In my current situation, due to the 'tuning-out' factor, I'm often misunderstood. I mean, if you're not really listening or engaged in the exchange then you're not going to actually HEAR what it is I'm saying. And if you don't WANT to be in the conversation, man-up and say so. There are always other people to talk to. People who've known me for many years understand me, and they do so because they've been a respectful participant in enough conversations with me to know exactly who I am and what I need. And in turn I also understand them and what they need out of the conversation.
This has turned into a bit of a purging session, really, and I've strayed a bit off-course. All of the above is connected, but my goal here today is to talk about what I need and what I'm willing to put up with. The Reader's Digest version of this would be---disrespect is a deal-breaker for me. One for of disrespect is not listening during an important conversation.
..... Part II coming next.
Friday, October 16, 2015
In the wake of a 12 hour night
Insomnia is the usual case for me, especially over the past year. Very difficult to fall asleep, and even more difficult waking up. It's not that I don't wake up, it's more that I feel like I've been hit by a truck when I do. This has been destroying my quality of life for some time now. And last night was an unusual event as I slept for about 12 hours. I do have to say, however, that it wasn't an unbroken sleep. But even if within that broken 12 hours I managed to get 11 hours, I can feel a bit of change today. Hasn't resolved everything, but I feel somewhat different. This has to be brought under control. And this... effects EVERYTHING about my life. EVERYTHING.
Sometimes, after I have a fairly decent night's sleep I wake up feeling odd, too aware of everything. I'm not sure this is a good thing, to tell you the truth. In fact, it's quite unsettling. In the fog of sleep deprivation and other limiting health issues it's almost a Godsend to have reality blurred somewhat. I know it sounds crazy, but you don't know my life.. not really. My 'life' hovers on the edges of that blurred reality for the most part, and when the lines begin to sharpen around what I've been ignoring and the stark reality of what actually IS...my anxiety builds. Why? Well, isn't it obvious? Frankly put---I don't like my reality.
Changing my reality:
I've not given up. I'm searching for answers. If those answers are WITHIN me, then those things are buried DEEP, because I can't seem to access them at all. So what's next? Yeah, you hear that a lot here, don't you? If I had the answers to that I'd already being doing it, trust me.
Still, I have to compartmentalize everything these days just so I can deal; I think we all pretty much do this. I guess the trick is to not completely seal everything off. *shrugs*
Healing. Healing is absolutely NECESSARY to getting back to myself again. I have to heal in mind, body, and spirit. No matter what, I will have no quality of life if I don't heal. So how do I do that? How do I heal while in a place that isn't conducive to healing? THAT is the million dollar question.
I'm stuck:
What do I do? Where do I go? How do I start? When do I start? How long will it take? Which path is right? Will I find my footing?
There isn't a single soul around that I can talk to about this. The few people I have to talk to I can't open up to. It's difficult to talk to someone who's not listening.
There's nothing that instills mistrust in another person than trying to talk to someone about something critical, important and having them shrug it off as if it's insignificant. I'm not a fool, and I can tell when someone really could give a shit less. All it takes is once, and I won't open up to that person again...
"Sorry to hear that. Hope you feel better soon." Wow. Can't tell you how much this one puts me off.
Platitudes are not only insulting and hurtful to me, but they make you look shallow and self-absorbed. Seriously.
It's been said that we live in a 'ME ME ME' era, and I have to agree. Opening up to another human being, wether a friend or relative, is almost pointless these days. At least it's been this way for me. And...this is why I have blogs. Opening up to people usually just brings on the deadpan platitudes that actually make me feel worse.
Does anyone in this country give a shit about anything at all?
Even T is deadpan, self-absorbed to the point of not seeing or hearing or feeling anything about anyone around him. Most of all me. But I'm adjusting to that, which means... my feelings toward him are changing radically, and now... irreversibly. He was warned about this some time back, so he knew the risk of maintaining the status-quo. Once I accepted that I have to focus on myself in order to heal, to get well, to reach for a better quality of life, to be happy, hopeful, and vibrant... things became both easier and more difficult at the same time. I never expected this to be easy.
Back to sleep...
My dreams tell all. I tend to dream a lot these days, and I dream of a reality that isn't, or at least used to be, MY reality. I'm never tired, sick, painful, or alone in my dreams. When I sleep.. I'm exactly where I want to be in my waking life. I know what it is that I want, and my subconscious is showing me every single night how vastly WRONG my actual life is. Many times I absolutely hate waking up.
It's going to be a long process, reaching my goals, and I will have to remind myself each and every day what those goals are. I will also have to do everything in my power not to give up, because what happens in the reality of my life makes me want to give up. This isn't a good thing. At all.
So, what now?
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So much for strong suggestions
ME22 & NE23. NEFL Eagle cam. Screen shot and photomanipulation by me. Copyright American Eagle Foundation. My physical jour...
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...with no excuses. I've come to a crossroads where my f'd up health and maintaining balance in my life intersect in such a way ...
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Sitting in the silence of the hour at hand, and I can almost hear myself think... if not for the crowding thoughts begging me to find answer...













