Showing posts with label compassion. Show all posts
Showing posts with label compassion. Show all posts
Tuesday, September 20, 2016
Thursday, September 1, 2016
Audio Blogs Continued....
NOTE: This was done a couple of days before uploading. From now on I'll try to remember to put dates on them for perspective.
Unbelievable how long healing takes with shoulder surgery. Worse than that is trying to heal in an environment not exactly conducive to healing. NOT my idea of actual 'living.' Anyway, audio blogs continue until I can type without severe pain....
Saturday, August 27, 2016
Pushing for Better.
I'm pushing harder now for healing and recovery from my shoulder surgery, so that means more intense physical therapy. What that ends up meaning is more aching and less ability to type... for a time. In the long run this will lead to faster results. So, sorry to say I have to do another video entry.....
Thanks for visiting & listening.
Thanks for visiting & listening.
Wednesday, August 24, 2016
The Risk of Redemption.
I played a bit with the idea of composing an audio/vid for myself, just something to remind me that there was, in fact, a time when I felt like a normal human being, when pain was minimal and sometimes absent, when I could behave normally, when restrictions of body (and now spirit and emotion) hadn't taken hold. I know I used to feel better and actually participate in L I F E. But for the life of me, my mind edits at will and separates the now from the then, the me I became and the me I once was. So to keep it all in perspective... I made an audio movie with pics ranging from 8 months ago to 4 years ago, before this big crash in everything that is 'my life' and 'me.'
I was hesitant to upload it here (still am), but a friend of mine said "Do it. Put it ALL out there, and to hell with what anyone thinks!" It feels odd to see my own face all over this video, but... it's mostly for me anyway, something I can look at and recall that L I F E was there in me, and maybe.. just maybe... I will start believing again. enough of the typing... arm aches horribly.
The compilation set as a reminder of where I once was in my L I F E and H E A L T H, remembering a healthier, happier me... taking a risk for redemption of myself, an apology to tell the woman I've become.... 'I'm so sorry I let you down."
I was hesitant to upload it here (still am), but a friend of mine said "Do it. Put it ALL out there, and to hell with what anyone thinks!" It feels odd to see my own face all over this video, but... it's mostly for me anyway, something I can look at and recall that L I F E was there in me, and maybe.. just maybe... I will start believing again. enough of the typing... arm aches horribly.
The compilation set as a reminder of where I once was in my L I F E and H E A L T H, remembering a healthier, happier me... taking a risk for redemption of myself, an apology to tell the woman I've become.... 'I'm so sorry I let you down."
Friday, August 19, 2016
What if...
What if you could be surprised at the stories I hold inside?
What if I told you that I've never trusted a soul 100% in my life but that I'm willing to now?
What would you ask me if you could ask me anything?
What if I told you that you'd be surprised at who I'm talking to, and would you want it to be you?
Wednesday, June 8, 2016
What to make of this week so far...
NOTE: Actual talking will commence post-whining. *snort*
Begin Whining: Waiting. The Watchman Device isn't, at least in AL, approved by BC/BC insurance. This means my cardiologist and electrophysiologist have to start the appeal process to get it approved for me. So the waiting game sits in and I'm stuck on a blood thinner I believe is ruining my health. So there's that. I also found out I may have a torn rotator cuff and may need surgery. Well alrighty then. But hey, if that's what it is an I have to go through Sx and have my arm in a sling for a month... I can live with that. The pain.. not so much. Since when did I become such a wuss?
I've always had a high pain tolerance, but I've never had chronic pain like this either. Guess I'll give myself a pass this time.
Somehow the idea of just living a normal life has receded into the background of dull static making it hard to hear myself think. Everyone goes through a little something every now and then, and sometimes it's a big something. It resolves, and people move on. This has been a very long haul so far, but I'll do the same once I get past whatever the hell this is. End whining:
Re-discovering 'me' again. Sounds so damn egocentric, doesn't it? Especially when you say it out loud. But hey, it's not like anyone else can do that for me, right? Getting through the steps of the day sometimes interferes with the process, trying hard to remember who I am and all that entails. In my situation, since it's not somewhere I've been my entire life, it's a bit more difficult given this is an abrupt situation, rather than a chronic one. It's a bit like a tidal wave of change that pummeled and stripped everything I knew about me and my life... completely away, removing almost all recognizable things and swept them out to sea. Well, on one had that really sucks. But, on the other hand it just means a clean slate. Right?
Then there's the debris, having to clear that away. Beginning to re-think and rebuild what was once 'me' is probably one of the strangest and toughest things I've ever face with regards to my own personal experiences here on planet earth. Not to say it's completely bad, mind you, but it is a little unsettling to have to repair damage that was done that was beyond my control. Medication and illness has a way of doing that sometimes. So be it.
(Have I mentioned I absolutely love coffee?)
Anyway, there are choices I have to make. Sounds reasonable, right? The trick is having the strength and energy to see those choices through. Like my choice, be it a small one, to visit ALL of my blogs today and catch up on things a bit. Sounds easy as hell, yet even now my arms are so weak and achy that I still have to rest them on the laptop as I type. So there's that.
What does all of this even mean? I'm still fighting. That's what it means. I've walked right to the edge of just giving up but have managed to not step off into oblivion. Isn't that how we all get through the hard times?.. not by saying there aren't difficulties but by saying there are and fighting being overtaken by them. Well.. that's me anyway.
I'm still reaching for a better life, and that counts for something. I guess.
Wednesday, June 1, 2016
Wednesday, January 27, 2016
Not Today
My mind is trying very hard to still be 'me,' which means there's SOMETHING still here I recognize a little bit. If only for a moment I can feel that spark, dulled by illness it may be, struggling to ignite something within the deepest recesses and protected by a very stubborn spirit. I refuse to let go and give in.
My body, however, has other ideas entirely, and it sends the warning signals with any attempt at doing anything remotely 'normal.' Don't move, don't clean, don't walk that much, don't pick that up off the floor, don't... just don't. *sigh* Enough already!... is what I really want to say.
I have to listen, though, because when I don't I pay big time. It's hard to accept this state of bad health I'm in, though I do know and accept that it's nothing I did, nothing I didn't do that caused this to happen. Autoimmune diseases are no one's fault.
I'm so incredibly tired...
Okay, body... YOU win today.
Thursday, January 21, 2016
First Labs Post-Prednisone & Azathioprine
Liver enzymes: At the start my liver enzymes (which is NOT a liver function test) were elevated some 7-8 times that of normal, depending on which end of normal you do the math from. Considered by the doctors I saw these were considered "significantly elevated." Some people have way more elevation than that, but apparently research says that the actual numbers don't always indicate prognosis or how significant the disease is at the time of diagnosis. But today, thankfully, I'm told that the one enzyme that is still elevated is only elevated by a little now and "Much better than where it was before." YAY!! That's good news!
While I have to wait to get the labs actually in my hand to SEE them, I was also told that some tests came back showing mild muscle inflammation. Not sure which test that was, but it doesn't really surprise me. I have labs rechecked next Monday also in order to make sure the Azathioprine is helping, and not hurting things.
Good news, right!? :D And hey, as long as those numbers go down and into the normal range, I can deal with some side effects from Azathioprine. I mean, as we go along this journey the prednisone will be tapered... and THAT is DEFINITELY a good thing! Not treating AIH means possible progression to cirrhosis. Only thing statistics say about this that I don't like much is that 80% of people who go OFF medication to control AIH have a flare up within 1-2 years, and it often comes with the nasty addition of fibrosis or cirrhosis. Yeah, I'm okay with medication inconveniences over death, thank you. ;)
So what's the deal with muscle inflammation? I've no idea. Guess that may be addressed next... we'll see.
How's that for some good news? :D
Tuesday, January 19, 2016
Dammit... tick tock, tick tock, tick tock...
Waiting again for a return call from the liver specialist's office. Still waiting on lab results that were taken to assess how well the prednisone is working to bring liver enzymes into the normal range, assess where I am in the path to remission, to see if and when the dosage of Azathioprine should be increased as the prednisone is decreased. No answers today as it's his day for surgeries and procedures at the hospital. I guess I will wait another day.
The unresolved issue with insurance not paying for a much-needed antibiotic is really wreaking havoc on my life right now. Nothing I've been given so far has helped, because the problem requires two antibiotics in order to cure the issue. So why on earth is it that it takes over a month of asking, requests, etc for a good insurance company to give approval? Why do they fight this knowing that ensuing problems caused by NOT taking care of this is going to cost much more? WHAT is their thinking? Well, from all I've gathered, from all i've learned, this is due to Obamacare.
Lovely.
But it's just a day, just another day. I'll deal with it, be it BEYOND uncomfortable (miserable really), and wait another day for hope, answers, anything at all that tells me someone is going to help. One thing I won't be doing is holding my breath, that's for sure.
I'm trying my best to not allow this to completely take me down. I'm winning that battle so far, but I don't know how much longer I can do that. I'm really tired of waiting.. and waiting.. and waiting.. and waiting. You've no idea how much havoc this can wreak on one's body by ignoring it for this long. NOT the doctor's fault... it's the insurance company. And I have a really good insurance plan. Imagine how it must be for those who have lower tiered plans!
Just another day waiting.
I guess I can do this one more day.
I think.
The unresolved issue with insurance not paying for a much-needed antibiotic is really wreaking havoc on my life right now. Nothing I've been given so far has helped, because the problem requires two antibiotics in order to cure the issue. So why on earth is it that it takes over a month of asking, requests, etc for a good insurance company to give approval? Why do they fight this knowing that ensuing problems caused by NOT taking care of this is going to cost much more? WHAT is their thinking? Well, from all I've gathered, from all i've learned, this is due to Obamacare.
Lovely.
But it's just a day, just another day. I'll deal with it, be it BEYOND uncomfortable (miserable really), and wait another day for hope, answers, anything at all that tells me someone is going to help. One thing I won't be doing is holding my breath, that's for sure.
I'm trying my best to not allow this to completely take me down. I'm winning that battle so far, but I don't know how much longer I can do that. I'm really tired of waiting.. and waiting.. and waiting.. and waiting. You've no idea how much havoc this can wreak on one's body by ignoring it for this long. NOT the doctor's fault... it's the insurance company. And I have a really good insurance plan. Imagine how it must be for those who have lower tiered plans!
Just another day waiting.
I guess I can do this one more day.
I think.
Wednesday, January 13, 2016
For those who've left comments... THANK YOU!
So it seems comment notifications haven't been working in a VERY long time, so if you've left comments and I didn't reply please know it's because I didn't realize anyone had left any. Blogger seems to have fixed this.. for now.
I appreciate everyone's feedback, more than I can find words to describe really. I guess, with the exception of those I know 'in person,' or those who contact me via social networking or email, etc., I often wonder if I'm just shouting or whispering into the wind here.
It was my hope that sharing my own experiences would help others, or make people laugh, or think... well, then it's all well worth it, especially with regards to "This Free Spirit," which was created to help work my way to a healing place post-abuse and hoping to help others along the way know they're not alone.
So again, if you've left comments on any of the entries on any of the blogs and I haven't respond.. I will. And hopefully Blogger's notification system re comments will continue to work!
Blessings and thanks to all of you...
I appreciate everyone's feedback, more than I can find words to describe really. I guess, with the exception of those I know 'in person,' or those who contact me via social networking or email, etc., I often wonder if I'm just shouting or whispering into the wind here.
It was my hope that sharing my own experiences would help others, or make people laugh, or think... well, then it's all well worth it, especially with regards to "This Free Spirit," which was created to help work my way to a healing place post-abuse and hoping to help others along the way know they're not alone.
So again, if you've left comments on any of the entries on any of the blogs and I haven't respond.. I will. And hopefully Blogger's notification system re comments will continue to work!
Blessings and thanks to all of you...
Thursday, January 7, 2016
Here We Go
By now you guys probably understand that I'm existing in that Prednisone fog. It's intense, and it's not exactly a good time being on this stuff... and it's exceptionally awful coming off. Once again, just a brief reminder that I will most likely reference this fact often, because it's overwhelmingly JUST THERE as a backdrop to everything I do or attempt to do. But having said that, I'm dealing with one day at a time, and most days.. one hour at a time, and having sliced the 24 hours in unequal parts means things are truly at a level of chaos unlike anything I've ever known.
Nausea now. Here it is in all it's glory, the beginning of Cushing's Syndrome-like effects, mostly unavoidable even when tapering slowly. Bear with me, because if I have anything to say it's going to be filtered through this experience. I can't promise it will be pleasant, but I can promise it will be truthful, real, and about as raw as you'll ever see me.
So, not to underestimate the power of steroid withdrawal, I simply face my thoughts and feelings on a case by case basis and hope for the best. Is it moodiness that makes me think this or that, is it reality squared? Do I ignore my feelings and tell myself "It's the prednisone"? Nah. Really, what mostly happens on this stuff is that the filters break down and allow everything to rise to the surface, unfettered by social graces. haha. Of course I have some control over it and can maintain some semblance of balance in my perceptions, etc. But I'm also finding it refreshing in a way to actually SEE and FEEL things on a very real level, even if it's unpleasant at times.
It's really weird, but I find myself facing things head-on that I would usually shrink away from in order to avoid any unpleasantness. In fact, last night I had someone who I've known for many years say something completely out-of-line and hateful on social media, snarky... bitchy... just really blatantly rude. A pre-prednisone me would've gotten her feelings hurt and simply left the conversation to die and wither on its own. I would've walked away, licked my wounds and distracted myself with other matters until the hurt feelings passed. Oh, but not last night...
Last night another, bolder me rose to the surface and in just a few words let that person know she was being mean, ugly, and asked her WHY. Not for MY sake, mind you, but so she had to face her own ugliness. Keeping it simple and VERY blunt I got my point across and actually had someone come to my defense, the very person who began the thread in the first place. A thread, mind you, that had nothing to do with what that ugly person was talking about. She basically just took a shot at me for no reason. It's okay, though, because my give-a-shutter is a bit broken right now and I'm able to speak my mind without regret. No, I'm not being mean or ugly. I simply spoke the truth in question form and let HER emotional machine deal with it all. Not my circus, not my monkeys... as they say.
I'm a little done with being a pushover, too-soft, and too much of an introvert that people walk all over me. Maybe this is my chance to grow a stronger backbone so I can continue to rise above any BS that comes my way. Maybe. Just maybe. I will still be me, just a little tougher than before.
Worth a shot anyway. I'm nobody's tool.
Nausea now. Here it is in all it's glory, the beginning of Cushing's Syndrome-like effects, mostly unavoidable even when tapering slowly. Bear with me, because if I have anything to say it's going to be filtered through this experience. I can't promise it will be pleasant, but I can promise it will be truthful, real, and about as raw as you'll ever see me.
So, not to underestimate the power of steroid withdrawal, I simply face my thoughts and feelings on a case by case basis and hope for the best. Is it moodiness that makes me think this or that, is it reality squared? Do I ignore my feelings and tell myself "It's the prednisone"? Nah. Really, what mostly happens on this stuff is that the filters break down and allow everything to rise to the surface, unfettered by social graces. haha. Of course I have some control over it and can maintain some semblance of balance in my perceptions, etc. But I'm also finding it refreshing in a way to actually SEE and FEEL things on a very real level, even if it's unpleasant at times.
It's really weird, but I find myself facing things head-on that I would usually shrink away from in order to avoid any unpleasantness. In fact, last night I had someone who I've known for many years say something completely out-of-line and hateful on social media, snarky... bitchy... just really blatantly rude. A pre-prednisone me would've gotten her feelings hurt and simply left the conversation to die and wither on its own. I would've walked away, licked my wounds and distracted myself with other matters until the hurt feelings passed. Oh, but not last night...
Last night another, bolder me rose to the surface and in just a few words let that person know she was being mean, ugly, and asked her WHY. Not for MY sake, mind you, but so she had to face her own ugliness. Keeping it simple and VERY blunt I got my point across and actually had someone come to my defense, the very person who began the thread in the first place. A thread, mind you, that had nothing to do with what that ugly person was talking about. She basically just took a shot at me for no reason. It's okay, though, because my give-a-shutter is a bit broken right now and I'm able to speak my mind without regret. No, I'm not being mean or ugly. I simply spoke the truth in question form and let HER emotional machine deal with it all. Not my circus, not my monkeys... as they say.
I'm a little done with being a pushover, too-soft, and too much of an introvert that people walk all over me. Maybe this is my chance to grow a stronger backbone so I can continue to rise above any BS that comes my way. Maybe. Just maybe. I will still be me, just a little tougher than before.
Worth a shot anyway. I'm nobody's tool.
Thursday, November 12, 2015
Screw Circular Logic
Being awake means you're not walking about with rose-colored glasses on, filtering every thought and deed through a common thought. Being awake means you SEE, you HEAR, and you act accordingly.
Just because you 'believe' and 'feel good' and are 'positive' doesn't mean you can walk across a busy interstate and make it to the other side unscathed. Oh, you might die HAPPY and POSITIVE, but you're still going to die!
"You don't feel good because you're happy. You're happy because you feel good." Even in the reverse this means exactly the same thing, taking both sides of the argument in this case. Circular logic or reasoning, or.. false reasoning.
The above is a direct quote from a well-known LOA speaker and 'guru.' And it's a blatant example of circular logic. It's easy for people to buy into because it appears simple on the surface. And guess what? It IS simple, because it really means nothing at all because it fails to give any information.
I guess I'm ranting on this because I see people on social media posting about this LOA thing, something that turns people into intolerant beasts when they embrace it full-on... which I never did. It made no sense to me, and it went totally against my Christian beliefs. That conflict was never going to be left alone to play itself out, like good vs evil, until one or the other won. Who the hell needs that anyway? Not me. I chose my faith and good sense over LOA.
Now, I don't mean to belittle anyone who believes in LOA. If it works for you, then so be it. My own beliefs are such that I'm not going to blame people for the bad that's happened to them in their lives, nor am I going to steer clear of people simply because they're struggling with something. That's just unkind and selfish.
Just freakin' be kind to others, people!
Okay.. hopping off the soapbox....
Wednesday, November 11, 2015
PART 2: Priorities Revealed
When I was informed yesterday that the procedure I was having was more serious and carries far more risk than 'just' the biopsy I thought I was having, my radiologist asked me if I had anyone there with me. The fact that I was alone in the section where I waited to be taken to my procedure didn't deter him from asking, because.. after all... I was the only patient there who didn't have anyone with them.
I told him T had dropped me off and went to work; and he just looked at me for a moment, sat down, and began telling me (using straight-forward language) how "Tricky" the procedure I was going to have, how serious it was, and about the risks involved. He said if I wanted to call T and give him an opportunity to come back to the hospital so he could be there as it's being done that they would hold off on performing the procedure until he arrived. The radiologist left the room, and I called T...
T's reaction? "Well, they have my contact information so that if anything happens they can call and I will come there."
I sat there for a split-second taking in his response, then was filled with the overwhelming need to hang up the phone, to NOT hear his voice at all. And while this isn't the first time I've felt this reaction, it was by far the strongest I've felt. I instantly went into self-preservation mode and wanted him nowhere near me.
The nurses, doctors, and other supportive medical staff were the only ones who made me feel like I wasn't completely alone. I accepted that for what it was and allowed myself to just focus on what was about to happen and put T far, far out of my mind. In fact, to be honest, he didn't enter my mind at all until at the end of recovery when I was told I was being released.
What does this mean? That's not a question I'm asking myself, because I already know the answer. I've been there, done that in the past with someone not giving a crap about my health, my well-being, and diminishing what I was going through or dealing with. Has society really become a nation of zombies who have nothing but bricks for hearts? I'm certainly beginning to think so.
I was supposed to go home and rest, not strain myself, no lifting, not even driving. But T had other plans, ones that made HIS life ultimately easier. Because that's what it all boils down to. The aching in my neck and liver had begun, so I prayed that the medication I was given at the hospital would kick in soon and I at least wouldn't be in pain.
A heart cath is scheduled for the 19th of this month (November), and I was given a lab order to get blood work done prior to that day, as soon as possible. T decided that since I was "Already out and about" that I should go to the lab to get the blood drawn. I was painful, loopy, tired, and I wasn't at all up to walking through a parking garage and hospital in order to get blood drawn. I just wanted to go home and rest. That's all. Just go home and rest. But that wasn't about to happen. T would have his way, and I would simply have to suck it up and deal with the unpleasantness.
This isn't the first time I've been with someone who lacks compassion, but at least I now know how to deal with it while protecting myself at the same time... thanks to a couple of past relationships. At least I was smart enough to learn from the experiences, and while those lessons were necessary and taught me much, it doesn't mean I'm not feeling the effects of what's happening.
Deja vu.
I'm still processing everything, having just gone through this yesterday. I've no real thoughts on the matter other than the obvious that one would expect to have after such.
I'll come to terms with things---perhaps when I feel stronger.
Wednesday, November 4, 2015
Like I need another hole in the head.
Well, this new one is about the ongoing processes of working out past injuries, as well as current ones...
Either way, it was a moral imperative. Finding my way in the dark is a necessity, and the link below will provide you with a window on which to see this happen. It's not always going to pleasant...
This Free Spirit
OR
http://abusebondsbroken.blogspot.com
PART 2: Selfishness as a matter of convenience (Where's the respect??)
I'm unimpressed. I'm completely unimpressed by T, and by the way most guys treat women. In my particular case, the disrespect is dehumanizing, demoralizing, belittling, and disappointing beyond anything I've known. It's not just this relationship, but in the past as well. My choices have NOT been the greatest, and my guess it's because I'm trusting and take people at face-value. This is NOT a good thing. At all.
As of yesterday a new low has been established, and I'm in no position to do anything about it. Thus is the case when dealing with control freaks who refuse to see that they're actions are completely selfish and self-serving. DON'T VOLUNTEER to do something for someone if you're only going to use it to gain control over that person! DAMN! How hard is that to understand?
All my doctor's appointments are now between my doctors and T. Why? Because ALL appointments aren't about what's necessary, or needed, or critical, or about doing tests etc in a 'timely fashion.' Nope. NOW my appointments are about what's convenient for T. It's about what he does or does not feel like doing, what works with his schedule (he's been told he needs to use a lot of his leave or lose it), and none of it has a thing to do with... me, you know, the actual patient.
Yesterday was a disaster, stressful beyond reason, frustrating in that I'm basically told I no longer have any control on when or what time I get an appointment. *sigh* One major symptom of late makes it dangerous for me to drive much beyond a few miles of my house. Dizziness/vertigo doesn't exactly translate into "safe driving." So I'm stuck for the time being, screwed beyond reason, because I have to wait for T to decide when I can see my ENT or Neurologist regarding the severe tinnitus, vertigo and dizziness that's come on over the past couple of weeks. I sit. And I wait. For HIM to decide when it's a good time to see the doctor about this.
Why the F***K am I here????!!!! Being here is unhealthy, both physically and emotionally. It's detrimental to my health and well-being, and the inner workings of living in this house with T has destroyed my quality of life.
Now, some of you know my recent history with relationships and know what I've gone through. I also know what you're most likely going to say to me and expect that email eventually. It's okay. Send it on. Maybe I need to hear that.. 'again.' ;) Either way, you're most likely seeing something familiar in all of what I'm writing, in which case I will say... I do too.
More later. I promise... the flood gates are open now...
Finally.
Tuesday, November 3, 2015
PART 1: Selfishness as a matter of convenience
Convenience. Everyone understands this, right? I know what it is. You know what it is. And this, like selfishness, has a hierarchy in which you determine what is right and what is wrong. That really should go without saying.
I'm getting to the point here, but I'm also indulging in non-emotional verbiage in order to get control of the raging emotions within. It's NOT easy, I'll tell you. Just bear with me for a moment as I attempt to gain a little control here before going off completely.
I've spoken about my health issues, so many of you know some of it is a bit on the scary side. I don't sit around in fear worrying all of the time about it, but I also don't completely ignore it thinking things will miraculously get better. The way things are right now I wouldn't wish on my worst enemy. Truly. I never thought I could feel this bad.
Today....
Things began in the usual way, with me trying to drag myself through a few mundane tasks and telling myself I'm going to get better, while in the next moment wondering if I can stand even one more day of it all. Not just the health issues, which are awful, but with this 'relationship' (for lack of a better descriptive word). I believe a person can deal with just about anything if they have a strong support network (which I don't), and also if their physical environment is conducive to healing If your living environment is stressful, depressing, hollow, empty, uninspiring... and more, you will have to do some serious magic to pull yourself up and out of whatever awful place you're in, both emotionally and physically/medically.
I have yet another CT w/contrast to go through. This one is for my lungs, to further evaluate the nodule, the unexplained scarring, etc. They had to put it off for about 3 months because I had a CT without contrast, which means they couldn't get all the information they needed. Honestly, it worries me how many of these imaging sessions I've had. Too many. But it is what it is.
My pulmonologist's secretary wasn't aware that I had a CT scheduled for the 18th, so when I called about some other test results (that aren't back in yet), she told me that she needed to make the appt for me. She chose the 9th. When I sent T a text to let him know when it was, he immediately went to "THAT" place where everything becomes all about convenience. What it really comes down to are priorities and where I am on that list. Where am I?...the bottom.
Some appointments I can't drive myself to and from, because they require someone to drive me. T has an enormous amount of accrued leave time available, about a month actually, and so if he has to take me to an appt, etc., it doesn't do any financial harm, and his boss has already said he needs to use some of that leave. He volunteered, and now he wants to complain about the dates and times of my appointments. SO... today I made a decision....
I told T that from now on my appointment will be between HIM and the person setting the appointment. I'm going to completely remove myself from the process because it seems these appointments are really about my health, but what is convenient for HIM. What was his response? "Okay." He feels pretty good about himself right now.
There's really no other way to take this situation, no other way to see it other than what it EXACTLY is---selfishness in full swing. Never mind that the doctor says he wants a test or procedure done by a certain time, as soon as possible, etc. It's not about that... at least to T. And he refuses to care that the longer these things are put off the longer I will be this sick. Things are completely out of hand in the world of control freaks. It's the truth. And why the F**K do I always end up with control freaks anyway? Well, it's not been in every relationship---there've been ones in the distant past that weren't like that.
And please, don't make the mistake of equating selfLESSness with buying someone things. There are FAR FAR greater kindnesses, trust me. Such as--treating someone with kindness and respect, being there for them when things are bad, listening to them without judgment, and actually putting their health, happiness, etc... ABOVE what's CONVENIENT.
Do you think being sick or dealing with a chronic illness is CONVENIENT for the person who's sick? HELL NO! No one wants to be this sick, so sick that they would do ANYTHING to feel better. NO ONE wants a shitty quality of life. So when you (using the word "You" loosely here) indulge in the 'This is so inconvenient for me" for me mindset, you're showing your true colors and actually causing harm to the person who's sick. I mean, if you can't muster any empathy, compassion, or caring, if your give-a-shitter is THAT whacked, then by all means remove yourself from that person's life so they can HEAL!!!
In all honesty, I remember the last relationship I had where I DIDN'T feel as if I were better off alone, and it was a LONG LONG time ago. Since then, I've usually ended up in a situation that left me feeling like the very best thing for me was to be single, because there was a total absence of health-destroying stress. And I don't think I have to go on about the levels of stress, the differences between that which motivates and that which can kill.
I can't fix someone's lack of compassion. I can't explain to them (where they'd get it) that buying something for someone who needs emotional support, love, compassion, etc... only makes themselves feel better. Because it surely doesn't do a damn thing for the person who's suffering.
No offense to the guys reading this, but... if you're one of those men who find yourself saying "I bought x, y, z for you, so I DO care!"... then you may have a problem. UNLESS that something you bought actually changed their life long-term.. the way true kindness and compassion does. Not to say that gifts can't represent compassion, etc.. because they often do. But you have to pay attention to what that person really needs, what they communicate to you. Because when you don't, you miss the mark.
I'm angry right now because my situation, my health, etc. isn't being taken seriously by T. It's damaging, stressful...which makes it more damaging. "I" take it seriously. My doctors take it seriously. But T continues to do things that either undo all the work I've done thus far, or he does things that literally thwarts my efforts.
..... PART 2 will be next. I have to gather my VERY scattered thoughts at the moment.
Tuesday, October 27, 2015
Testing patience, and those damn zombies
I've been told that if someone is complaining a lot that they're just 'negative.' What I learned from an expert is actually the opposite. While complaining about what negative things are going on in one's life may appear negative in itself, it's actually a side effect of seeking answers, resolutions, and working towards understanding of the situation. It took me a while to understand and accept that it's a natural part of a necessary process, though, but I now understand what's going on and why it's okay, sometimes, to vent. Some of this most people already know. In the end, if someone is complaining about x, y, and/or z... listening can be of SO much benefit to that person. And for those who proclaim that the person's 'negative energy' is wrecking their day, their mood, etc... you may want to consider that it's not that person's 'energy' that's wrecking anything.. it's your perception and resulting Reaction that changes things on your side.
Research, for example, has shown that in times of stress, anxiety, anger, etc... using the 'F' word actually lowers blood pressure! Funny, I know... but absolutely true. When it comes to complaining, as long as the person is venting the pressure they feel in the process... then it helps. If the complaining is merely a habit---then it's most likely a groove they've gotten themselves into, rather than an immediate stressor they're trying to work through.
If I had a dollar for every time someone says they're a "Good listener".... I'd be rich.
There are good listeners, and there are some who completely and totally SUCK at it. And should you ever REALLY need someone to talk to you better know which people in your life fall into which category. If you trust the wrong person and let it all out, you're likely to feel far worse than had you said nothing at all; I think we've all been there. Just a little inventory of your personal social network can tell you a great deal about whom you can trust. And by "personal social network" I mean just that. Not online social network ONLY, but the people you interact with, be it online or off.
The enablers...
These types of people listen, all right, but their usual reaction is to commiserate with you. This is neither appropriate or helpful. There is a difference between 'understanding' and 'commiserating.' People understand may offer up something to let you know they've 'been there, done that and understand what you're going through.' There's nothing wrong with that at all, and it makes the person who needs to talk feel much better about their situation. But then there's the OTHER type, the ones who jump right in and complain heavily about their own experiences, tell you their entire life story, then tell you why you should keep feeling the way you do. These people are easily recognized because you walk away from the situation feeling much worse, and also feeling like there's really little hope. They in effect enable whatever negative emotion you're feeling while jumping on board and adding fuel to the fire. Not to be confused with those who are offering up good advice while being emotional about it.
The Borg...
Think I'm kidding here? lol I call some people 'Borg' when they harbor both contempt and indifference to your pain. As you vent these people appear completely detached, and quite often respond with a little more than a grunt or canned response (if they really respond at all) while also trying to change the subject to something more palatable to them. These types are actually quite dangerous to your situation, because on some very deep level they want you to feel worse. Sounds crazy, yes? These folks often KNOW you're feeling bad, down, etc... and ASK WHY you're feeling that way, only to respond with impatience, contempt, and sometimes even anger. And this is IF they work themselves out of their own disinterest in you and your situation. Steer clear of these types!
The zombies...
Many of us have watched enough zombie movies etc to know what zombies do. Zombies are consumed by their own needs, self-interest, and will take whatever it is they want, no matter what it takes to do so. They feel nothing, and they're relentless. The only driving force is the all-consuming hunger to 'feed,' and they don't care if the person they're 'feeding on' is a family member, friend, loved one. Zombies are consumed by 100% self-interest. Period. Oh, and there's the that lack of humanity thing. Sounds like a lot of human beings, doesn't it?
While these zombie types don't try and eat your face off, they will still utterly consume you piece by piece until there's little left of you; and what is left is barely recognizable. This type of person is by far the most dangerous of all. This type of person psychologists refer to as narcissists.
Of course, the analogy of the zombie here is used somewhat loosely because I'm not talking about people who have no pulse, aren't breathing, and who eats the flesh of another human being. Silly as it is for me to say that, I still feel I must. But let me also clarify something---if you put everything a zombie is into an actual living, breathing person... it's pretty frightening.
My past relationships have included Zombies and Borgs, and those experiences nearly destroyed me as a person. Truth.
Thursday, October 22, 2015
Guys and epic failures: The humor and the hurt
I will refer to my friend as R in order to keep her anonymous...
Skipping over the tearful parts (because she reads my blogs) I will say that the entire subject matter of our 3 hour+ conversation was primarily about guys and their epic failures in relationships. Now, for the couple of guy friends who I've given my blog addresses to... you know I'm not referring to you! Some guys are sweet, genuine, real gentleman...to say the least, but those guys are very, VERY rare, and I will tell you this---you will NOT meet those great guys online. Sorry to burst the bubbles of those on dating sites, but... you simply won't. Advice---save yourself the grief of even going there (online dating sites), because pretty much everyone I've ever met, with the exception of one person who met her guy on a Christian dating site (one you pay for), has found that there's mostly riffraff on there. And ladies...seriously, it does NOT matter what they guy does for a living or how much money he has! Just don't go there!
Okay, so R's ex (a recent event, btw) seemed to have been maintaining his profile on a popular dating site...the entire time he was with her. God, but her story sounds just like mine with my ex! She found out via another friend who is also on the site...when he showed up in her searches (same thing that happened to me). So as she cried and expressed her shock, bewilderment, hurt, and anger over the phone... I remained quiet, thoughtful, and listening, because I have been where she is now, and it's one seriously ugly place to be.
I think it probably took her a good 2-30 minutes of crying and venting before she took that deep breath, sighed, and waited for me to respond. She already knew my history, which means she knew I would understand. And I do. I told her how sorry I was that she had to go through that, and I told her she had every single right to feel outraged for what was done to her by this "guy" (whom I did not ever refer to as a "man" for obvious reasons). Then she began to gush details, ones that in the light of day and 'after the fact' are really... well, rather hilarious.
She spoke of his quirks, personality flaws, and especially about his sexual inadequacies, ones he apparently was quite proud of. I have to wonder if all guys are clueless to the things THEY like... that simply don't work for women? So we talked about this for a bit, about why guys sometimes do what they do in the bedroom when it only benefits them and leaves their partner... well, unsatisfied.. or turned off completely. With the latter in mind, the real conversation began. She spoke of how the last year of their relationship she'd gone completely bored with him, sexually, how everything he did was for himself, and how he seemed shocked and angry because she was losing interest and couldn't hide it any longer. She spoke of conversations she had with him that, at the time, seemed SO serious...when in retrospect were completely laughable. Hindsight, you know... lol I've had many revelations like that myself.
I felt for her as she told me in great bloody detail how her guy had failed repeatedly to perform. "Hours. We would do it for hours, with his talking and moaning and going on and on and on. I mean, he was so into his performance, into himself that I think he completely forgot I was even there! What the hell?" After a moment's pause and neither of us saying anything... we both started laughing. Suddenly the unspoken part of our mutual understanding of such things became something we could laugh about. This is a good thing.
She told me that he was attempting to perform OS on her and that after some time of his robotic performance she told him to stop...to just stop. Wow, I have to say this one really hit home for me, because the very last time "I" enjoyed or even wanted OS this was done to me, as punishment (a subject for another day). And when she said, "I told him that was it. I didn't want him to ever do that to me again!" Well, we can certainly say this was an epic failure on his part. And as R talked... I could see, like with my previous situation, that this really was the beginning of the end for her.
She spoke of issues beyond sex, the cruelty, the way he made himself scarce in her life... leaving her wide open for meeting someone else, etc. How is it, we both wondered, that guys can be that blind to the things they do that change the way their GF's or wives feel about them?..only to go on to blame her for the relationship eroding? It's a mystery, I'll tell ya. A mystery. But R and I had a lot of laughs as we talked, and she at least was able to get to a point in the conversation where she was focusing on what she REALLY wanted in a guy, a relationship, rather than the time wasted with someone who honestly didn't have her best interest in mind anyway.
"He's not going to even notice I'm gone until, during sex, he looks down and sees that I'm actually not there!" lol I will never forget that phrase! Hilarious.
I'd asked a guy friend of mine about 3 years ago why some men behave this way, and he said that not all guys do, then added... "A lot of guys are attracted to themselves" and added that if the woman makes HIM feel sexy then he feels attracted to her for that reason, that men can actually be turned on by their own performance in bed, rather than the women they're actually in bed with. WOW! I was really shocked to hear this, though I shouldn't have been given my experience.
My friend, whom I will call "C," is extremely intelligent, has a lot of guy friends, women friends, and is fairly open and blunt when he speaks. He'd been warning me about my situation nearly the entire time as he saw things in my relationship that were, in his words, huge warning signs. Should I have listened to him? I don't know, because I believe that everyone that comes into our lives are there for a reason, and it's usually to teach us something. In my case, a couple of things broke, and I mean really broke that I'm pretty sure can't ever be repaired. The experience changed me so significantly in a couple of ways that I just don't see those parts of me ever returning to what they were prior to the relationship.
I can't really can't say here what it is that's broke so completely due to account settings. I'm not sure if anyone 'under age' has stumbled across my blogs or not, so I have to keep some of this on the down-low.... until I change my settings back again to include a warning for adult content. Until then, let's just suffice it to say that while I mourn the parts of me that were shattered in that relationship I do recognize the protective stance I've taken since then. My trust in guys is severely diminished due to what I went through, and I don't allow anyone to reach that vital part of me, of who I am. Maybe this would change if I resumed therapy, which I had to resort to after the break up so I could repair most of what was damaged. But, I'm not exactly sure I'm ready for that, because a huge part of me likes things just as they are.
The person I'm with right now has been flourishing in the 'epic fail' department. He knows, and he's not given any of it any real thought, time, attention, nor is he made any effort to work on things. His bad, because I'm beyond arms-length now and am completely focused on my health and well-being, rather than him. It was a natural course of events as my health plummeted under the onslaught of the past and the damaging effects of the now. As controlling as the previous relationship was, this one is as controlling...but in a very different way. Either way, control doesn't work for me, and I am going to give absolutely everything I have to regaining my health, self-esteem, and repairing my damaged self-respect. These are the only things that matter right now.
R and I had a good conversation, and one that ended with us both laughing. I think she's going to break free from those traumatic bonds and move forward as a strong, single woman. She isn't up for another relationship, and I can certainly understand that on SO many levels! For me, I refuse to be another afterthought, slave, or punching bag for any guy. If I'm not appreciated, then I will appreciate myself first and foremost. It's the least I can do.
The conversation with R has reminded me of things I'd left for dead in my recent past. So be it. I'm sure I needed reminding for some reason. Maybe that will be my motivation to plug ahead with getting my health in check, to become stronger inside and out, and to also remind myself that the choices I've made in light of my past are mine to make and mine to keep. What's done is done, and thought I came out on the other side of things somewhat broken, changed... it's probably for the best.
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So much for strong suggestions
ME22 & NE23. NEFL Eagle cam. Screen shot and photomanipulation by me. Copyright American Eagle Foundation. My physical jour...
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...with no excuses. I've come to a crossroads where my f'd up health and maintaining balance in my life intersect in such a way ...
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Sitting in the silence of the hour at hand, and I can almost hear myself think... if not for the crowding thoughts begging me to find answer...











