When I'm without words, music...

When I'm without words, music...

So Incredibly Weak.

It's been a few days, hasn't it?  Tapering off Prednisone is kicking my ass.  I'm so weak, cold, tired, dealing with nausea.  I'm about to go lay down for a bit, cover with a snuggly blanket and try my best to warm up and feel better; I really don't like that this has become my current 'Norm.'  When, oh when, will this start to improve?  When will I be able to re-join the land of the living again?

No answer...

I just can't sit here anymore...

"Cause every time is the last time..."

PART 1: I wasn't supposed to be... awake.

But I was... the entire time during the procedure.  It's not exactly the nightmare they make movies and write books about, but it more than surprised me, and it most DEFINITELY surprised the radiologist performing the procedure.  Really.  I was supposed to be asleep.

I arrived at the hospital yesterday morning to have a liver biopsy done.  I'd already researched enough to know what to expect, talked to people in the forum I belonged to to hear their experiences.  I wasn't expecting to be this surprised.  Oh, but I was.. and in more ways than one.

When the radiologist came in with another doctor to talk to me about the procedure, what to expect, how it will work, etc., he mentioned HOW they were going to access my liver.  Now, this is where the first surprise came in...

He began telling me that Dr. S wants things done a particular way and that the procedure I'm having is "tricky" because it involves entering the jugular vein and inserting a wire that will be able to reach the portal vein in the liver in order to check the pressure there.  He began telling me the risks to the heart and lung and liver.  I listened, but I was confused because I thought I was to be there for just the biopsy and didn't know anything at all about checking the portal pressure.  Skipping ahead...

We talked a little about the procedure, and the radiologist reassured me that Dr. S was very specific about what he wanted done.  I asked if anything bad had ever happened during the procedure with anyone he's done it on and he said that the only thing that has happened in his (long) career was one patient's heart went out of rhythm and wouldn't go back in, so they had to stop the procedure, send him to the cath lab to shock his heart back into normal sinus rhythm.  Ok.  Only one event.  So I said..  "Ok.  Let's do this."

The Dr. assisting the radiologist explained about the two medication that I'd be given, that I wouldn't be put completely under but would be unaware of what's going on and wouldn't feel anything, except perhaps the lidocaine they would use on my neck where they would make the tiny incision to access the jugular.  He said I would just 'sleep' through the procedure and would not have any recollection of it at all once it's done and I'm awake.  I was familiar with this because I'd had a heart cath in 2013, and ablations on my heart in 2014... so that twilight sleep I know about and have experienced.

...Off to the OR we went.

Once on the table the anesthesiologist told me she was giving me the first dose of sedation, and that it would be done in stages until they're ready to begin the procedure, then she added "The lidocaine may bring you out of this for a moment because it stings, but it will be brief."  By the time they were ready to begin I was loopy as hell, but I was awake.  One last dose was given, because I was awake... and I think I nodded off for a minute or two.  Then I was awake again.

Awake, aware of my surroundings enough to hold a conversation.

I heard the radiologist say he was administering the lidocaine.  Oh yeah---I definitely felt that.  But it quickly receded and I felt nothing in that area.

I felt the cath wedge go into my jugular, and I continued to feel it go down my chest, felt something strange with my right lung, felt it proceed past my heart--to which my heart fluttered a little--and then nothing... for now.

I heard every word said, heard the radiologist talking to the doctor that was there, even remember hearing him calling out the numbers once he began reading the wedged pressure and free-flowing pressure.  I remember the numbers exactly.

A couple of times the anesthesiologist raised the blue drape over my face to look at me, and I returned with a smile.  Then... they changed Caths and went back in to take the biopsy samples...

The first "snap!" I heard had only a little discomfort with it.  The second "Snap" was a bit more painful and I said.. "Oh, that one smarts!"  This was the first time the radiologist knew I was awake.

"How much did you give her?" I heard him ask the anesthesiologist.  "She's awake."  She responded with the dosage she'd given me, and he said.. "Wow.  I would be on a vent if I'd had that much."  He has a smile in his voice, so I know he was just joking a bit. Plus I was familiar with this radiologist as he'd done the biopsy on my thyroid nodule a year ago.  He's good guy, a really skilled radiologist.

So the third "Snap" I heard came with significant cramping across the entire front of my ribcage, where the liver is.  And oh yeah.. THAT one definitely hurt.  And folks, I have a high pain tolerance for stuff like this, having kids, etc.  So when I say it hurt.. I mean it.

Once they were finished they removed the blue drape and one of the nurses told me she was applying pressure to the little hole where they'd entered the jugular.  She told me there may be a bit of a bruise there and that she was sorry if the pressure she was applying hurt.  It really wasn't that bad, and I told her so.

As I lay there with pressure being applied to my neck the anesthesiologist came over and apologized that I felt pain and explained she wasn't sure why I remained awake.  I assured her that it was okay and that the pain I did feel didn't last a long time, that I was okay.  They returned me to recovery.

I told my nurse there what happened, and she looked at me as if I'd grown a third eye. lol  The other nurses turned around (my bed was right next to the little desk where all the nurses sat) and gave me a look of horror. haha   Hey, no events... so to me this was a good procedure.

I'll have the results in a few days, I think.  But I don't believe I have portal hypertension at all.  I believe Dr. S just wanted to make sure due to some of the symptoms I was having.  As for the presence of any cirrhosis... I don't believe that's the case either, or Dr. S would've seen the prominent veins in my esophagus etc. when he did the EGD a couple of months ago.  What I DO expect is to see  if NASH is actually present and to what extent, and if there is any fibrosis or not.  I fully expect the outcome to be okay, with perhaps  NAFLD or maybe NASH if inflammation is present.

Like I need another hole in the head.

New blog.  Honestly, sometimes I wonder where I get all the time to post in all of these.  In some ways having the focuses of my entries in separate blogs helps me maintain cohesive thought.... well, at least I TRY.  Expressing everything in one common place just makes for a serious muddle in which it's difficult to sift through sometimes.  I mean, I revisit some of my entries to see where I am.  I mean, isn't that what a 'diary' is for?

Well, this new one is about the ongoing processes of working out past injuries, as well as current ones...

Either way, it was a moral imperative.  Finding my way in the dark is a necessity, and the link below will provide you with a window on which to see this happen.  It's not always going to pleasant...

This Free Spirit

OR

http://abusebondsbroken.blogspot.com

Narcissists Destroy Who they cannot Control

M... please listen to this carefully.  And anyone who may need to hear this... Praying for anyone who's been subjected to this.

PART 1: Selfishness as a matter of convenience

Selfishness is a part of all human nature.  When a person believes they're not selfish--they're lying to themselves.  The degree of selfishness matters, as does the reason, because in selfishness.. every detail does matter.  Some selfishness is necessary, and we all know this.  When someone wants you to help them and you have other plans that are 'higher on the proverbial totem pole,' then it's a matter of priorities.  Putting off taking your sick child to the doctor just so you can indulge a friend who needs to rant... is down-right insane.  In the pecking order of things---you simply do not harm another person with your selfishness.

Convenience.  Everyone understands this, right?  I know what it is.  You know what it is.  And this, like selfishness, has a hierarchy in which you determine what is right and what is wrong.  That really should go without saying.

I'm getting to the point here, but I'm also indulging in non-emotional verbiage in order to get control of the raging emotions within.  It's NOT easy, I'll tell you.  Just bear with me for a moment as I attempt to gain a little control here before going off completely.

I've spoken about my health issues, so many of you know some of it is a bit on the scary side.  I don't sit around in fear worrying all of the time about it, but I also don't completely ignore it thinking things will miraculously get better.  The way things are right now I wouldn't wish on my worst enemy.  Truly.  I never thought I could feel this bad.

Today....

Things began in the usual way, with me trying to drag myself through a few mundane tasks and telling myself I'm going to get better, while in the next moment wondering if I can stand even one more day of it all.  Not just the health issues, which are awful, but with this 'relationship' (for lack of a better descriptive word).  I believe a person can deal with just about anything if they have a strong support network (which I don't), and also if their physical environment is conducive to healing  If your living environment is stressful, depressing, hollow, empty, uninspiring... and more, you will have to do some serious magic to pull yourself up and out of whatever awful place you're in, both emotionally and physically/medically.

I have yet another CT w/contrast to go through.  This one is for my lungs, to further evaluate the nodule, the unexplained scarring, etc.  They had to put it off for about 3 months because I had a CT without contrast, which means they couldn't get all the information they needed.  Honestly, it worries me how many of these imaging sessions I've had.  Too many.  But it is what it is.

My pulmonologist's secretary wasn't aware that I had a CT scheduled for the 18th, so when I called about some other test results (that aren't back in yet), she told me that she needed to make the appt for me.  She chose the 9th.  When I sent T a text to let him know when it was, he immediately went to "THAT" place where everything becomes all about convenience.  What it really comes down to are priorities and where I am on that list.  Where am I?...the bottom.

Some appointments I can't drive myself to and from, because they require someone to drive me.  T has an enormous amount of accrued leave time available, about a month actually, and so if he has to take me to an appt, etc., it doesn't do any financial harm, and his boss has already said he needs to use some of that leave.  He volunteered, and now he wants to complain about the dates and times of my appointments.  SO... today I made a decision....

I told T that from now on my appointment will be between HIM and the person setting the appointment.  I'm going to completely remove myself from the process because it seems these appointments are really about my health, but what is convenient for HIM.  What was his response?  "Okay."  He feels pretty good about himself right now.

There's really no other way to take this situation, no other way to see it other than what it EXACTLY is---selfishness in full swing.  Never mind that the doctor says he wants a test or procedure done by a certain time, as soon as possible, etc.  It's not about that... at least to T.  And he refuses to care that the longer these things are put off the longer I will be this sick.  Things are completely out of hand in the world of control freaks.  It's the truth.  And why the F**K do I always end up with control freaks anyway?  Well, it's not been in every relationship---there've been ones in the distant past that weren't like that.

And please, don't make the mistake of equating selfLESSness with buying someone things.  There are FAR FAR greater kindnesses, trust me.  Such as--treating someone with kindness and respect, being there for them when things are bad, listening to them without judgment, and actually putting their health, happiness, etc... ABOVE what's CONVENIENT.

Do you think being sick or dealing with a chronic illness is CONVENIENT for the person who's sick?  HELL NO!  No one wants to be this sick, so sick that they would do ANYTHING to feel better.  NO ONE wants a shitty quality of life.  So when you (using the word "You" loosely here) indulge in the 'This is so inconvenient for me" for me mindset, you're showing your true colors and actually causing harm to the person who's sick.  I mean, if you can't muster any empathy, compassion, or caring, if your give-a-shitter is THAT whacked, then by all means remove yourself from that person's life so they can HEAL!!!

In all honesty, I remember the last relationship I had where I DIDN'T feel as if I were better off alone, and it was a LONG LONG time ago.  Since then, I've usually ended up in a situation that left me feeling like the very best thing for me was to be single, because there was a total absence of health-destroying stress.  And I don't think I have to go on about the levels of stress, the differences between that which motivates and that which can kill.

I can't fix someone's lack of compassion.  I can't explain to them (where they'd get it) that buying something for someone who needs emotional support, love, compassion, etc... only makes themselves feel better.  Because it surely doesn't do a damn thing for the person who's suffering.

No offense to the guys reading this, but... if you're one of those men who find yourself saying "I bought x, y, z for you, so I DO care!"... then you may have a problem.  UNLESS that something you bought actually changed their life long-term.. the way true kindness and compassion does.  Not to say that gifts can't represent compassion, etc.. because they often do.  But you have to pay attention to what that person really needs, what they communicate to you.  Because when you don't, you miss the mark.

I'm angry right now because my situation, my health, etc. isn't being taken seriously by T.  It's damaging, stressful...which makes it more damaging.  "I" take it seriously.  My doctors take it seriously.  But T continues to do things that either undo all the work I've done thus far, or he does things that literally thwarts my efforts.

..... PART 2 will be next.  I have to gather my VERY scattered thoughts at the moment.

Running interference

"STOP!"  Some words have lost their effectiveness.  As many times as I tell myself to stop with the stupid internal dialogue it has yet to have any real effect on me.  Damn, but my inner child is stubborn as hell!  But then, all of me tends to be that way.  With a lack of a support network I'm left to my own devices, and the on-screen blabbering of an indifferent internet to fill that void.  Guess what?  NONE of it's working.

Inspiration, more specifically the lack thereof, squashes motivation before it even gets out of the gate.  Am I saying I'm uninspired, then I would have to say "YES!"  Knowing my situation will only change when I facilitate that change (personally) is enough pressure all on its own, but when I'm told my my cardiologist that I can't exercise until after I have the nuclear stress test and get the results, well, that really puts a massive damper on things.  And waiting is just another level of hell.

My subconscious is raging against all that's happening, behaving like a willful, spoiled brat, and one in which I can't exactly order to go stand in the corner somewhere.  So the tantrums ensue, unchecked.  Yippee.

Yesterday I saw an orthodontist about an oral device that will help with this mild sleep apnea.  While waiting in the office I thumbed through a huge binder filled with handwritten testimonies of people who've gotten this device (which is a lot like what you wear to protect your teeth if you grind them in your sleep).  Anyway, encouragement and hope literally poured from the pages, and I actually felt myself on the verge of tears at the thought that "I" could really feel THAT good again.  There are things I still need to do with regards to my teeth, like get a dental implant for the one I cracked severely from years of grinding my teeth, so that will slow things down a bit.  Waiting... has never been my strong point.  Delayed gratification sucks when it's something this necessary, vital even.

For every night I spend in poor sleep, I wake to feel as if I'd not slept at all.  So how is it that I'm going to be able to wait for the next few weeks in order to deal with the process of getting that dental implant?  How in the hell do I make myself okay with feeling like THIS for yet a few more weeks?  I really don't know that I can do it.  BUT, I have to.  They can't have them make that oral device before I have the other done because it won't fit.  Ugh.

As my subconscious rages, as it seeks to pout and crawl into a deep, dark hole where it can sulk in private, I'm left with the aftermath of its childish behavior; depression, hopelessness, sadness, bewilderment, and at times anger.  Screw this.  My subconscious and I need to have a damn talk!

I really could use a support network right now.  Having to admit such a frailty is really uncomfortable, I'll have you know.  Over the years I've changed from someone who was open, okay with expressing feelings and allowing them to flow through me so I could deal with them, to someone who refuses to cry in front of anyone, to show my vulnerability, and to even express my needs.  This unpleasant change began a few years ago and has continued to hold onto the part of me I want back.  I feel like a damn hostage inside my own body.  Wtf?

Free me...

PART II: You can't treat me this way

I no longer care if I'm heard.  My resolve is strong enough that I can take things from here.  My guess is that many guys shrug things off and feel justified in their indifference, and I am more than okay with that right now.  I'm in a place that indifference, silence, and flipping the switch to autopilot just gives me more time to focus on what I need, healing, happiness and health.

Give me enough space and I will build a universe!  And yes, L, you may quote me on that. ;)

Even when I resort to the introvert side of me, or if I'm venting in order to sort through the muddle, I'm a LOT stronger than you think.  Don't underestimate me, because others have and discovered quickly that I don't require their help, blessings, or support in such matters.  If it comes down to the wire... I've got this!

Yes, it would be nice to have people close to me who are supportive.  But I've long since learned that it's not an actual requirement in order to succeed at my goals.  of course, there is a lot that's to be said about having a good support network when you're going through difficulties.  Still, if that network and support isn't there, I have to resort to my own devices.

This is where I am right now.

....Will continue this soon...

I hate freckled bananas

I mean, they look like they've lost their will to live.  And the really brown ones, that's just overt depression.  The key to helping them is to give them a new reason to live; you know, like.. banana bread.

Our Own Personal Static

Being present.  It's not always the easiest thing in the world, is it?  I mean, every single human being on this planet has to deal with pulling themselves back from their own personal static.  It's not about being falsely-focused during a conversation, but rather being genuinely interested, connected, even polite.  The static is always there, always real, and it makes us who we are.  In fact, that static of our own thoughts is a simple by-product of a complex intellect.  And we are all participants in self-indulgence, mired in the buzz and whir of, well, thinking.  There's just too much going on in our heads, right?

Wrong.

I can say with confidence that being ignored isn't one of my favorite things, and yet it is a daily energy-suck that refuses to let go of me.  I live with someone who is chronically in the throes of his own personal static.  Honestly, these days I feel like a ghost, invisible, and as if I have absolutely no voice whatsoever.  It's getting to me.

This entry sat in "Drafts" for some time now, and oddly.. it's relevant to what's going on STILL.  I'm personally tired of the static I'm surrounded by in my everyday life here with T.

More on this another time...

A Beautiful Mess

I often think; here is this unrecognizable person in a completely unrecognizable life.  What do I do about finding my place.  Dear God, but this is a common topic, isn't it?  There's a reason for that, and that reason is quite simple; I've yet to know the answer.

Monday-Friday are the easiest days of the week, the best days really.  I'm alone, but that gives me a moment to take a deep breath and try to navigate on this crumpled map whose lines and defining points have faded or become too abused to be read anymore.  If I'm to find my way it will require intuiting and an enormous amount of courage.  Without a sense of direction there's no telling where I'll end up when I reach the unknowable destination.  I guess I'm okay with that, though.

One thing I can say is that I can clearly see my destination.  Well, okay.. most of it.  But I see enough to know where I should be.  And isn't that really what we need to know?  Isn't that the most important information of all?  I certainly think so.

So many plans; so many thoughts and dreams colliding all at once.  It's a beautiful mess.

Dear Subconscious... SHUT UP!!

These dreams.  You know.  I've talked about them in past entries.  They're always quite memorable.  They don't leave me be but haunt me throughout the days, nights... in far too many waking moments. They arrive, unbidden, though I do admit to having contemplated the why's and wherefore's of their appearance.  Especially now.  Maybe because of now.  Not one damn answer as to why....

Dwelling on these dreams isn't a 'thing' with me, and most of the time it's just this haunting feeling I get... that eventually eases as the day, or days, go on.  The intensity of their message(s) increases with each subsequent dream, and I just don't know what to think about them.  It's just freaking weird.

Dear subconscious....  SHUT UP!

You found a what?

Well, yesterday's appt did NOT go the way I expected.  At all.  Not.  At.  All.

So I went for my follow-up appointment with my pulmonologist yesterday, mostly to discuss chest CT and sleep study results.  The minor part is that they found 'mild sleep apnea.'  Ok.  Then he went on to discuss the lung nodule...and something else they found on the CT.

Doctor F stated that the lung nodule was slightly larger, but it also is "Very strange looking."  He went on to explain that there is a "Tubule" attached to the nodule that the radiologist says "May" be due to an impacted/clogged something-or-other-that-I-can't-rember due to my inability to sleep work a f*ck!  Sorry for the potty mouth, but it's true.  Anyway, the nodule is odd and he said he has to "Think about it a bit..." and may possibly do another CT scan, only with contrast this time.  He's not sure, because he doesn't know what to make of the findings.

Then he said there is another nodule... 1.9 x .5 cm... in my breast.  Well K den.

Next week I have to have another mammogram, and they're insisting they MUST have the last one that I had first, the imaging.  I'm a little spooked by this.  No one is telling me the characteristics of the nodule, and now I understand why the imaging center flat refused to give me a copy of the report... that was finished the day after my CT.  Normally.. I have no issues getting copies of lab or imaging reports.

I also have to see a hematologist (possibly) for the anemia, because the colonoscopy and EGD did NOT show any causes of the anemia.  I will start Rx iron pills today or tomorrow, though.  Hoping I can tolerate those.

Now the big, fat, giant wait.  Again.  Seriously?

I'm nervous about the mammogram, obviously, but the worst part is T's attitude.  He is just mostly put out because I wanted him to give me a ride there, to be with me while I have this screening.  He basically complained, meaning it was an inconvenience.  I simply told him, never mind... I will take myself!  I certainly don't need some whining, self-absorbed, watch-checking complainer coming with me on THE SCARIEST and most stressful test to-date.  Mr. Indifference needs to keep his distance, because what I need right now is far from whining, complaining, etc.

Yes.  It's time to be a little pissed about this.  And I am.

Dammit!!

So what of the heart, home, a place where my soul can feel uplifted, rejuvenated, allowed to grow and breathe and soar?  Dunno.  Still waiting on that one, I guess.  Dealing with the anemia is a start.  PC doc is referring me to a hematologist to see what the cause is.

Dammit again!

*sigh*

The Big [E]Vent...

Well, such is the way things go for me and blogging, I spent a large portion of time and energy posting on Where Fireflies Dream.  Many times I end up there first, which means the unloading happens in it's full-blown glory before I get here.  Just check the links (side of this page) that says Alter Egos.  Those are my other blogs, as I've mentioned before...

So the big [e]vent happened and I'm left spent, exhausted, and wondering if I really accomplished anything at all.  I'm also wondering how many people think I should be doing the big 'vent' to the person who needs to hear it.  Well, I assure you, I have been quite clear on how I feel, discussing the problems I have with the way things are, and stating clearly that my needs as a person simply aren't being met in any way, shape or form.  And oh honey, those words fell on completely deaf ears.  People are often emotionally lazy, and T... is one of those people.  He won't put any effort into anything, so... flipping the switch to autopilot and sitting on one's own emotional ass will get you nowhere with me.  I will simply find a way to live my life... without you.

This is the beginning of that very thing.

Hey, I know some guys don't do this, and even the ones who do don't all do it to the same degree.  But emotional laziness never got anyone anywhere.  I mean, seriously... if you expect one person to do all the work, you're going to be in serious trouble in the end.

50/50.  But in my case it's more like 20/80.  And I'm freaking exhausted.  Okay, T.. take the damn wheel or you'll be flying alone!  And chronic remorse isn't going to fix this.

Okay, so I'm finding my way along and, although I struggle at times, I'm still plugging forward.  I will find a way.  I will find my life.  And I WILL find me again.  It's just a matter of time.  Once the anemia is resolved, and once I get an "All clear" from my cardiologist on the whole Grade 2 Diastolic Dysfunction thing... I'm going to put everything I have into getting healthy again.  Iron supplementation may make it difficult, and restoring iron stores takes a really long time.  But I can do this.  I MUST do this.  I WILL DO THIS.

Watch and see.

PART 1: While I was looking the other way...

After focusing on the liver issues and anemia and how to resolve them, I didn't take into account that anything else could be causing or contributing to my symptoms.  After my ablations last year for AFib, Atrial Flutter, and Supraventricular Tachycardia (SVT), I figured that was going to be pretty much it for heart issues.  I've had Mitral Valve Prolapse since I was a kid, and yes... that valve began to leak and is at the mild-moderate stage at this time.  I'm supposed to get a yearly ultrasound to keep an eye on things, and up till this past week it was just something I had to do.  I'm about 6 months late on this past one because the clinic I usually go to has lost 3 doctors to career move or changes, and this means my appointment got pushed months out due to the shortage of doctors.  I didn't really think much of it and decided to see if I could get my yearly ultrasound done when I went to see my EP about getting the Watchman Device implanted in my heart... at his suggestion.  I won't discuss that particular device right now because I've previously posted about it.  And I've yet to see if I can even have the procedure done in lieu of recent ultrasound findings.

Saturday (22nd) I received the ultrasound report in the mail.  I certainly didn't expect to see what was on the sheet, to tell you the truth.

I know the MVP can get worse in some people, and mine is slowly getting worse.  I also know that during my last two ultrasounds I discovered that my aortic valve was also leaking.  Well, it is what it is, and this is why I get a yearly ultrasound.

So I'm home alone and looking over the report that arrived in the mail on Saturday, and I see several things listed that surprised me...and I've listed the highlights below.  I will get to what it all means in a moment...

Left Ventricle
Diastolic filling demonstrates a pseudonormal pattern (new).

Left Atrium
Left Atrium Chamber is mildly dilated (new).

Right Atrium
Right Atrium Chamber is mildly dilated (new).

Aortic Valve
The Aortic Valve is mildly calcified.  There is mild aortic regurgitation (I already knew about this).

Mitral Valve
The Mitral Valve leaflet is mildly thickened.  There is mild-moderate mitral regurgitation (knew about this as well, with the exception of the valve now being thickened).

Tricuspid Valve
Trace tricuspid regurgitation (new).

Pulmonary Valve
There is trivial pulmonic regurgitation (new.  "Trivial" refers to the amount, but there is nothing trivial about this).

Diagnosis

Grade II/IV diastolic dysfunction.  This is heart failure.

Okay, so... there it is.  Now what?  Basically, Grade I is pretty much reversible and doesn't require treatment.  Grades II, on the other hand, requires treatment in hopes it won't progress quickly.  I have to wait to find out WHAT that treatment will be.  For some, this occurred due to high BP, but for me.. it was most likely a combination of years of having SVT, MVP, and then Afib and atrial flutter.  It's not like they can treat my HBP because I don't have that.  I may still end up on a beta blocker (hate those) to slow my HR down so it fills properly and doesn't regurgitate back into my lungs.

So yeah, there were a few new things that I learned about from this last ultrasound, none of them good.  Grade II is usually symptomatic, and I now wonder how much of the awful symptoms I've had are due to DD and not anemia or liver issues.  Something interesting that I've discovered, however, is that at night the pressure can cause RUQ pain in the liver.

Well, what do I do with this information?  Simply put, I need to get my shit together.  Exercise (with Dr's approval) is necessary, diet changes (low-fat and low-sodium), etc.  The usual.  My question is--- how the hell do I exercise when I now deal with exercise intolerance?  I guess I will have to find out.

I've been in a sort of daze since I received the news, and while I'm not really 'scared,' parts of me think I should be, because fear is often motivating in these circumstances.  Still, I'm not sure how I feel about this.  And as for T... he's indifferent, doesn't talk about it, and goes through his entire day as if I told him I stubbed my toe.  And it's not the 'I'm going to think positive' type of indifference, either.  He really has this reaction to just about everything, unless it's about him specifically.  This has been an ongoing problem of late, and it's now become more critical than ever to figure out what it all means to me.  Doesn't really matter what his indifference means to him, because he just claims he's not.  Denial isn't a river in Egypt.

So the question remains... how do I feel about this?  The answer is.. I really don't know.

It's not easy to sort through something like this without talking about it.  But who do I talk to?  No clue.  No clue at all.

One Small Source of Light

...is all I need.

I've unloaded pretty much everything on Where Fireflies Dream, so the remnants of what I'm left with are a bit more personal in nature.  Damn, but I wish I could talk more of what's going on with me--meaning specifics.  I'm not sure exactly where to start if I did, and it's not like I haven't tried.  Oh boy, have I.  But would it change anything if I were truly blunt with what I write in my blogs?  Would it matter?  Would it help?  And what, if anything, would I get from laying things all out on the table?

Is there a single soul who can answer those questions??

Anyone?

Anyone?

Bueller?

Bueller?

Bueller?

lol  Well, I still have my sense of humor intact.  At least there's that.

C'mon life, give me a sign!  To tell, or not to tell?

*sigh*

Where Am I?

Lost in the sluggishness of a muscle relaxer, my thinking may not be as sharp as it could be.  Dr's love to prescribe those things, and in some cases I'm sure they're a great idea.  Just not so in MY particular case.  But I do trust my doctor and, therefore, will do a two week trial of this stuff.  Nasty stuff, Flexuril.. and way too many side effects.  TWO PAGES of them!  Ugh.  But that's not what I'm here to talk about.  Just thought it may be a good idea to mention what I'm taking in case my thought processes are a little off today.

Bluntly speaking, it's been a f'kd up few days.  Had the EGD and colonoscopy the other day, and the outcome was a little confusing really.  My doctor removed a 'precancerous polyp' and said I have to have a colonoscopy once every 3 years.  Those who've had to go through those procedures know one BIG fact about them---the procedure isn't anything to worry about, but the prep SUCKS!!!!  I really wish I could just get it done every 10 years like low-risk folks.  OMG.  I won't even go into it, but I really REALLY hate going through the prep.

I'm also waiting on the results of my heart echo, and I had my chest CT done yesterday to re-check the lung nodule and to get a full view of the lungs.  The nodule was found during an echo of my abdomen (kidney stones), so the dr needs a full view of what else is there, if anything, and to see if there's been any change since the first CT.

About those CT's... anyone who's had them or having them needs to know that the radiation is cumulative!

My own history with CTs and other imaging is below (not exactly in order):

April of 2013      CT (head)

                           P.E.T. (head)

                           MRI (head and chest)

January 2013    CT

                           P.E.T. scan done on my chest.

May 2015           CT (dental)

August 2015      CT chest. 

March 2015        CT head/mouth at the dentist.

February 2014   CT at ENT

The above does NOT include x-rays.

That is a lot of exposure.  So I guess I need to make sure that the doctors understand how often I've had these in the past 2 years.  Honestly, I didn't really know it was that critical.

Oh well.  Live and learn, right?

Amidst all the health crap and various other things going on, I find myself wondering where the hell I am most of the time.  Yeah, yeah... that's nothing new, but the matter has become far more important now than it has been in the past.

Blah-blah-blah.  I'm a bit unfocused today.  Damn Flexeril.

Reminder: My other blogs

A couple of you have sent me messages on FaceBook regarding a few issues I promised to talk about or update about.  I have.  You may have just missed where I spoke about them.  This was the problem I mentioned previously about keeping all 3 of my blogs.  But you guys begged me to keep them all, so I did. :)

So as a reminder, and to either clear up confusion or create more, here are the links to my other blogs.  You can always find them in the menu section (side bar) under Alter Ego.  Also, in case you've forgotten, mostly the separate blogs are for focus, so that all topics don't all end up getting blended together in one place.

Hope this helps...

Where Fireflies Dream

http://gothicwell.blogspot.com

All Things Ephemeral

http://autumnwhisperstome.blogspot.com

Boo’s Juicy Bits

http://boosjuicybits.blogspot.com

Each blog is designed for a specific purpose and focus, true, but all of them overlap in many ways.  I may end up burning myself out posting on one, and may not get a chance to post an entry on the others the same day, or at the same time.  There will be times, in other words, where it may appear as if I've not made an entry...when I actually have but on a different blog.

A brief explanation of the blogs may help a little bit.  Just remember that even if a topic/blog may not interest you, I may have spilled everything there and not posted elsewhere.

Where Fireflies Dream was intended to be a place for dreams, wishes, hopes, plans, goals, etc.  But it's evolved over time into something bigger than that.  That's about all I can do to explain this blog.  There are days when the focus is implied, and days when I'm speaking in contrast to what the focus actually is.

All Things Ephemeral is the original blog, the one I built and posted on about anything and everything you could possibly imagine.  I used to give quite a bit of details, which often meant deleting entries after a time that said too much.  Hence the name "All Things Ephemeral."  Now, I've not recently unloaded in detail there, so most of the entries remain intact.

NOTE:  It must be said that when I do post in great detail there the post may not remain for long.  So if you make it a habit of reading posts in this blog you probably won't miss anything.  If you wait too long.. the entry may be deleted.

Boo's Juicy Bits:  Now this blog is mainly about health and diet in the context of flirtatious fun.  With health issues wreaking havoc, however, it's changed the entries for the most part.  But as things change and I get on top of things... it will return to its original and flirty content.  I'm not about faking things to entertain, so you guys will know pretty much where I am by what you read there.

Again, ALL of these blogs intersect in some way.  They all have a purpose, to which I've tried to keep true on, but they still cross over one another in ways.

Okay.  Enough of this.  Again, you can find the links to the Alter Ego blogs in the bar to the side of each blog.

Well... this liquid diet is kicking my ass today, so I'm off here for now.

*waves*

Liquid diet and decisions, decisions, decisions

Today is the day before my EGD and colonoscopy (just had one last year), and as anyone who's gone though a colonoscopy knows... the day before, the liquid diet, and especially the prep... is absolutely awful.  So that's what I get to deal with today.  It is what it is, and it's only until tomorrow afternoon.

I honestly can't remember if I even spoke about it here, but I have to have the EGD and colonoscopy due to nonalcoholic steatohepatitis and my ferritin being pretty low.  Normally with liver issues the ferritin goes UP.  In this case the Dr suspects a bleeding situation, such as peptic or duodenal ulcer, the latter being the highest suspicion.  Either way, today isn't going to be fun or easy.  C'est la vie.

On with the liquid diet consisting of mostly clear Gatorade.  I also have a few other things on the list that I'm allowed, but I have to drink 8oz of Gatorade no matter what, and then begin drinking the prep solution (mixed with clear Gatorade) at 4pm, and begin the doses of dulcolax at 3pm and again at 5pm.  Why am I telling you guys this?... so if you ever have to go through this, you'll will have had a heads-up as to what you'll possibly be facing.  Trust me, I wish I'd known before my first one, because I would have INSISTED on another prep than the old kind.  It's horrendous, and I flat refuse to EVER drink that stuff again.  Why the hell doctors still use that garbage is beyond me, especially when there are far kinder preps out there at their disposal.  Just saying.

Diet---decions.  I'm striving toward a Vegan diet and have been transitioning from an ovo-lacto vegetarian diet.  Not eating meat is easy for me--of which I've explained in the past.  Meat isn't that important to me, and I don't crave it like some people do.  And when I have eaten it in the past I usually felt sluggish afterwards.  Fish, however, didn't have that effect on me.  Still, giving up meat was simple.  My problem now is my health issues and the change in diet that's on the horizon once we get down to the bottom of things with the low ferritin, liver issues, etc.  Oh, and finding out the hard way that there was hidden dairy in something.  I will spare you the horrors I go through if that happens.  But anyway....

Much is unknown at the moment on how to proceed from here.  So many ill effects from medications I've taken in the past, including weight gain and completely f'ing up my metabolism to the point where I'm finding it difficult to lose.  *sigh*  Still, aside from that I do wonder what I will be asked to do.

Will the doctor tell me I have to eat meat?... will I have to go Paleo?  I know low-carb is one way to fight what's going on with the liver, but... low-carb and Vegan/Vegetarian do not mix!!  All of what I've read people are on a low-carb, higher fat and protein diet.. such as South Beach.  I really don't know what I'll be told, but I do know that if I really am dealing with NASH... I'm at a huge risk of fibrosis...then cirrhosis.  Though rarely do people who have NASH reach that stage, it is still a risk.  Nothing like those who drink, however.  I'm at least quite fortunate there.

So considering the possibility of having to deal with adding animal products back into my diet I'm left feeling a bit lost and uncertain.  I don't think I can do it, even if the doctor says it's necessary.

There has to be a way for me to maintain my chosen lifestyle and achieve the results I need....